
[https://www.bbc.co.uk/news/uk-northern-ireland-68159827](https://www.bbc.co.uk/news/uk-northern-ireland-68159827)
Women waiting too long for NHS gynaecological treatments end up having potentially avoidable major surgery, a retired teacher has said.
Anne Donnelly, 43, had an operation for endometriosis two years ago and is awaiting physiotherapy.
A major review of gynae services said health trusts need to re-prioritise those waiting over a year for surgery.
The Department of Health said the report recognised “unacceptably high” waiting times.
It added that the department would work to progress the recommendations, but that some will require “additional investment” which could impact delivery.
‘Debilitating pain restricted my life’
The review found that more than 37,000 women were on hospital waiting lists in Northern Ireland with 5% of those waiting nearly three years for treatment.
Anne Donnelly, from County Tyrone, was diagnosed with endometriosis at the age of 22, after years of attending various GPs, specialists and a psychologist.
“I went from being a bubbly, active, outgoing 15-year-old to overnight having a debilitating pain that restricted my life and eventually led to me abandoning sport and Irish dancing. Endometriosis takes over every part of your life.
“It is excruciatingly painful, it is like someone is sticking a knife into you; it takes the breath from you. I’m still shocked that we have to fight seven, eight, nine, 10 years before we are taken seriously,” Anne said.
She said women feel “abandoned” by the NHS, with some having their bowels or womb removed as disease, such as hers, spreads.
**Northern Ireland has the longest gynaecological waiting lists in the UK**
The review of gynaecology was conducted by the Getting it Right First Time (GIRFT) team, an external organisation on behalf of the NHS.
The team spent a week last year visiting the five Northern Ireland health and social care trusts.
Dysmenorrhoea, endometriosis, incontinence, hysterectomy, prolapse and urinary tract infections are among the conditions covered by gynae services.
Waiting lists for these conditions are the worst in Northern Ireland and also when compared to similar lists in other parts of the UK.
The review recommends:
* The Department of Health should promote a single trust gynaecological patient tracking list.
* All five health trusts should “urgently develop an improvement strategy” for waiting lists.
* Planned surgery must become “resilient” so it does not “shut down” during the winter months.
* Outpatient procedures and day case gynae surgery should be focussed at Mater, Lagan Valley, Daisy Hill, Causeway, Omagh and South West Acute (SWAH) hospitals.
The review recommends the creation of a gynaecological hub in each trust, including at the South West Acute Hospital in Enniskillen
What have the trusts to do?
The review makes recommendation for each health trust.
It said Belfast should “urgently develop an improvement strategy to address the outpatient and surgical waiting lists and include the introduction of a surgical robotic programme, similar to what exists in England”.
It added that an action plan should be developed within one month of receiving the report.
The Southern Health Trust was advised to open a dedicated female surgical ward for gynaecology, breast, and female urology patients with a minimum of two protected beds for each specialty.
In relation to the Northern Trust, the report suggested promoting the Causeway Hospital’s gynaecology unit as the main elective day case hub.
There were 17 recommendations for the Western Trust, including creating a dedicated gynaecology/women’s health unit and to commission an abortion MVA service.
It also noted action was needed to resolve the “issue of Swah consultants leaving” for the Southern Trust.
In the South Eastern Trust, the suggestions included a need to develop Rapid Access Gynaecology Clinic for 10 sessions per week.
What of maternity services?
Earlier this year, the Department of Health confirmed the decision to permanently move maternity services from Causeway to Antrim Area Hospital.
The report suggested a similar consideration be made to maternity services at Swah and Daisy Hill, where “a similar move to centralise services would free up clinical time and space for other elective women’s services”.
Anne Donnelly is now awaiting an MRI and physiotherapy treatment.
She said in the past 30 years, little has changed around gynaecological services.
Like most women in her position, she was told that painful periods were “normal”.
“We are ignored and it’s not good enough anymore, I am still facing the same discrimination because I am a woman, I am still facing the same comments about periods and endometriosis,” Anne said.
“How can a young woman, at 43 with three kids, a teacher be left abandoned by the NHS and the government because we didn’t have a government or leaders making decisions?” she said.
by isfuathliomreddit
10 comments
[Endometriosis: How new treatment ‘changed my life’](https://www.bbc.co.uk/news/health-56245521)
[Endometriosis: Women in NI ‘not getting good deal’](https://www.bbc.co.uk/news/uk-northern-ireland-49935193)
[Endometriosis:](https://www.bbc.co.uk/news/av/world-60922369) A hidden disease affecting 1 in 10 women
If I get one comment saying “I’LL SORT OUT THE WAITING LISTS” I will personally haunt you in the night
I’m still waiting for my smear results from August, too. Clearly, women’s health is not a priority.
Would this be less severe a problem if it had Stormont running the past two years?
all waiting lists are long
I was referred for a consultation in 2019, aged 43. I’ve had gynae issues all my life.
At the end of last year, I got a letter asking if I wanted to stay on the waiting list. I’m now 47 and have started getting symptoms that I presume make me peri-menopausal.
I don’t think the difference in age between referral and appointment is given enough importance. By the time I see someone, it will probably be for completely different issues.
Been on a gynae daycase surgery waiting list in BHSCT since Nov 2019. The list was 4 years at that point, and they stopped taking patients off that list in March 2020 and never started again. It’s probably 8 years at this point, if not more. Zero will from the Trust to get itcmoving again.
Hopefully the GIRFT review kick starts things but I won’t hold my breath!
I got one of those letters from about the smear test fuck up in the Southern Trust. Still have yet to hear anything more about it, and have still not been contacted about my routine smear that was due in October. It was giving me a lot of anxiety so I went private through Kingsbridge but how many women can’t do this and are sat wondering if they’ve had false positive test for years
I live in London with my girlfriend and she’s had an absolute shitshow of a year with this.
After weeks of waiting for an appointment they told her she had a fibroid, but it was small and benign and not worth worrying about. Few months later symptoms start to bother her – extended periods, cramps, difficulty exercising. She books another appointment but the gynecologist cancels it and refers her to a phone consultation with what we can only assume was an agency doctor due to the lack of information she had about my girlfriend.
Instead of offering a way to find the cause of the issues, she tells her she can go on the pill – after my girlfriend tells her she reacted badly last time she tried it, the doctor says her only other option is to have her womb taken out. That’s it.
Anyway, she files a complaint and gets a GP appointment. The GP writes to the gynecologist to tell them to see her, the gynecologist once again says the problem isn’t urgent and postpones her appointment. After repeated GP appointments, blood tests, a heavy period that lasted six months straight, a belly that looks like she’s pregnant and the complete inability to exercise despite being a former gymnastics champion, a different gynecologist sees her and tells her the fibroid has grown massively and now the only way to get it out will be essentially C-section surgery, with one of the risks being that they might need to remove her womb.
It was a 20-minute non-invasive procedure when they spotted the fibroid, by the time they reluctantly agreed to see her it was the size of a small baby and weighed over 1.1kg and required major surgery.
I’m not even going to go into the following 6 months of waiting for the surgery, only to have it cancelled on the day, and being forced to wait another two months for the next slot.
And yet what about the Protocol????
F the DUP