‘Part of me has died’ – Rosalie, 32, has life ‘destroyed’ by Long Covid

https://www.stokesentinel.co.uk/news/stoke-on-trent-news/part-died-rosalie-32-life-9242588

by No_Engineering5992

26 comments

  1. She felt validated by a sham treatment in South Africa that did not work?

  2. I feel for this lady and the situation she’s in, but the reporting of this concerns me. They talk about how she has been “gaslighted” by the NHS and went to South Africa for a “revolutionary” treatment. As far as I can work out this treatment has doesn’t have any controlled trials yet and looking at what she says about it:   

    >“I had to sign to say I understood that in rare circumstances this could be fatal. Unfortunately, the medications did not have any impact on symptoms. My time in South Africa was horrific. I collapsed several times and was in and out of hospital but it was worth every minute to have my experience validated.  

    a) Doesn’t exactly make me feel the NHS was wrong for not offering it and b) Sounds like an excellent set up for placebo effect.    

    >“I have at times been gaslighted and, in my opinion, treated negligently. Millions of people around the world are looking for that magic bullet to cure them. It’s unlikely that we will find this anytime soon. I am still seeking other treatments, including trialling drugs for HIV patients.  

    I don’t know what they’re meant to do? It sucks for her but the clinicians treating her don’t have a cure yet and if her expectation is that they should experiment on her, I don’t think that’s reasonable. She can say what she wants, it’s the papers who are irresponsible repeating it with no journalism.

  3. She’s trying all these experimental treatments that are illegal in her country and is asking advice from strangers on the internet. Long covid is real and she needs to follow the best guidelines from her doctor and not try to rush things and make them worse.

  4. From the other side of the pond, YouTuber *Physics Girl* had a [long live-stream yesterday](https://www.youtube.com/live/v8HWt9g4L0k) of her awful condition after 2 years with long covid.

    Included was [an actual interview with a leading physician](https://www.youtube.com/live/v8HWt9g4L0k&t=6607) who explains how it is related to the known [ME/CFS](https://www.nhs.uk/conditions/chronic-fatigue-syndrome-cfs/)

    tl;dr Covid doesn’t directly cause the symptoms, it’s just one of many virii that kick off the condition in certain people.

  5. I feel sympathy for people who continue to suffer symptoms after having respiratory illnesses.

    I lose that sympathy when their story heads off into taking any sham or unproven treatment offered and then trying to blame a lack of research speed for taking stupid risks and wasting loads of money.

    This woman seems more intent on having her victim status validated than improving her health.

    Also saying anxiety and depression are symptoms of long covid is absolutely ridiculous. Anyone who gets chronically ill is going to feel negative emotions about it, come on.

  6. There’s some being diagnosed with ME, CFS or MS when its long Covid and test showing its not MS but they insist it is.

  8. > Rosalie, from Stoke-on-Trent, (…) diagnosed with Long Covid following her booster jab.

    🧐

  9. Why does it keep mentioning she’s been triple vaccinated?

  10. Chances are there’s nothing much wrong with her physically but there may be psychological issues.

  12. Can’t be bothered with yet another bullshit article about someone with an undiagnosed personality disorder.

  14. Why does long covid, just like chronic fatigue syndrome, primarily affect women?

  15. Lost my sense of smell after I got covid or the vaccine, not sure. But it’s a real pain at times.

    But I’ve heard of people really messed up out there.

  16. My German friend caught a nasty case of long COVID two years ago. It all but wiped out his physique and made him have to quit his manual labour job.

    He’s now re-training and working on getting his IT certification. But for him that’s an easy journey. He’s basically one of those people who struck it big twenty years ago in IT and enjoyed a comfy early retirement.

    Long COVID is no joke. If it can harm a double vaxxed middle aged guy with black belts in two martial arts then just think what it could do to someone less protected.

  17. I think a lot more people are affected by Long Covid than we realise.

    I’ve had a small cough for 3 years now that I will never shake, when I went to the GP about it, they just shrugged their shoulders and refused to believe it was an ongoing problem.

    My stamina and energy levels have never been the same. I used to be an energetic individual, but I’ve had to transition to working from home part time, as otherwise I’m just not able to function properly.

  18. I mean no disrespect. But in my dyslexic adhd brain I thought the title said Rosalie, 32, has life “destroyed” by Craig David. I hope she gets some help with her long Covid troubles.

  19. Long Covid isn’t new. It’s post viral fatigue, or ME. Once upon a time it was known as yuppy flu.

    It’s been around for years. I wish it wasn’t rebranded as “Long Covid” because it’s misleading and also kinda brushes over the fact it’s not new and just contributes to the hysteria.

  20. Because the medical field is too arrogant to say “we don’t know”, it sadly pushes people into the loving harms of scam artists.

    The medical oath should start to include safeguarding practices surrounding when you don’t know the answer and how to move on from there.

    Medicine refusing to be honest when it doesn’t know has helped so many people become misinformation shills and victims. And the overwhelming majority are usually women who suffer from both medical sexism (and medical racism, where applicable).

    I’m already considering leaving a support group I’m in because I’m tired of seeing desperate women asking if some snake oil rubbish they saw online will help them cause their doctors keep ignoring them.

    Now, anything that science or the doctor hasn’t caught up with in their studies is “psychosomatic”.

    I spent years from my early teens complaining but kept trucking on with my life. Only to finally have a huge crisis and rapidly decline from then on. Only to finally be diagnosed 5 years later and be told that me trying to lead a regular healthy lifestyle was causing damage to my body. Imagine in the 18 years that I complained someone didn’t treat me like a mug and I had a proper lifestyle plan in place and didn’t cause permanent damage to my body being told this is my new reality and I’ll never go back to what I could do.

    I get no financial compensation for the mental damage, I get no financial compensation for the job losses because barely anywhere wants to do remote so your choices are limited. My 20s was just a sharp decline and everything I’d worked hard for slipping through my fingers.

    If it was just the mobility side, it’d actually be ok, but it also had a neurological cost too so I’m fatigued all the time. Whenever I get in denial and ableist that it’s “mind over matter”, I learn the hard way when I’m in and out of sleep for several days after. And the sleep is never restorative, I just can’t stay awake.

    I hate those wellness scam artists who take advantage of desperate and vulnerable people. I honestly hope they all fall into a volcano.

  21. Isn’t it time we renamed whatever the fuck is going on that people are calling Long Covid. Whatever the fuck it is gets triggered by various virus’. It’s just that a fuck load of people had Covid in a short space of time that we’re all associating it with Covid specifically.

    This is not to diminish what people suffer when they get “long Covid” but I think it somehow gets associated with being some kind of malingerer when it’s directly and only associated with Covid.

  22. Welcome to the club of millions with long term health conditions unable to access medical care.

  23. When will they call it what it is……ME?

    Oh yes, because the previous government has told the Dr’s to tow the line and say its all in your head with ME. If they call this ME then the floodgates will be open.

  24. That is possibly one of the most poorly written articles I have read in a long time.

    Did the Stoke Sentinel get the interns dog to write it or something?

  25. 1 percent of the population are hypochondriacs.

    1 percent of the population get long covid

    🤔

  26. long covid isnt real its just give me attention syndrome look a physics girl on youtube this shits fake.

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