Inquest of woman unable to chew food told of shortage of beds for Myalgic Encephalomyelitis patients

5 comments

1. The GP dealing with this has PTSD from this case.

   Wow.

2. It’s absolutely scandalous that the NHS doesn’t know how to treat severe ME patients these days. While there literally isn’t a lot of treatment for illnesses like this, the UK is lagging behind places like the US who do at least try to treat issues like getting nutrients into severe patients. This whole thing makes my blood boil, that poor woman and her family. And her doctor too, who seems to have really tried and been let down at every avenue.

3. Sounds like this lady need a TPN line / Feeding Tube, TPN line last resort will say mind you.
   as someone who handles TPN lines daily there is massive risks with them.
   But yeah she might be worth seeing someone up in Manchester there bit more specialized with people who can not eat and their gut dont work or work well.
   Small medical hospitals suck even GP practices for this type stuff.
   I know its ME so its not a gastro motility problem but this links to it as its stopping her from eating.
   So Manchester might be good bet and the main hospital deals with ME.
   But yeah UK got problem with there being only one specialized doctor for 1 type of health condition in whole of the UK.
   If you got a specialized problem you might need to do lot googling to track down where to be referred to and not just go to a GP and pray they know.

4. Speaking as a higher functioning ME sufferer myself, this is a dread all of us keep in the back of our minds. Sometimes I wake up in the morning on one of my ‘bad’ days and worry that it’s the start of a downslope that’ll lead me to this. The NHS are no help, sometimes through no fault of their own (I for instance get neuropathic pains that painkillers don’t work on) and sometimes because the doctors of the ‘old school’ think ME sufferers like myself that appear to be functional are just milking it.

5. I wanted to read this article. I did.

   What is with the ads appearing in the middle of the text, pushing what you’re reading up or down off the screen? That’s the most infuriating mechanism for advert I’ve ever seen