My husband is bedbound with ME at 37. I grieve for the life we had

https://www.thetimes.com/uk/healthcare/article/long-covid-and-me-left-my-marathon-running-husband-mute-and-bedbound-76jpzfzk6

by No_Engineering5992

12 comments

  1. Upvoted. With thoughts for her husband, wishing both of them the best.

  2. My wife was diagnosed with ME.

    It affected her for about 2 years. She was able to beat it with structured exercise training plans and she went on to run an ultra marathon years later.

    She attributes the continued push/will to get better through structured exercise plans and push through the incredibly/deliberating tiredness (“like walking through treacle” as she described it), as the key to getting through it.

  3. I’m 47 and bed bound from it. Thinking of them and all sufferers.

  4. Why are there so many posts about ME on here? At least one a week.

  5. Cannabis is an option with it being medically legal in the UK and it’s fairly easy to get a prescription. Unfortunately the NHS will not cover it so you have to go private and pay for it yourself.

  6. I feel for her.  My husband was 35 at onset, told he’d never work again at 36.  It’s a devastating illness and robs both him and you of so much.

  7. I understand. I’m grieving for the life I used to have before my husband got chronically ill.

  8. Strange that they both have been diagnosed with ME.. I wonder if there’s some other underlying lifestyle factor at play that hasn’t been picked up on.

  9. I remember when this was a joke condition nobody took seriously like 20-25 years ago. Glad things have changed a bit

  11. Did they take the vaccine? How do they know the disease isn’t from that?

  12. My sister has ME, diagnosed as a young teen, and now mid-20s. It has devastated her prospects, career wise and socially. It’s so upsetting to see, and so frustrating the lack of treatment. I hope there’s a revelation in the medical industry regarding ME soon

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