
I wanted to do this last year on Intersex Awareness Day, but forgot about it. Since there was a big generalized thread about trans issues yesterday, though, this felt like a good time to make a “short” post raising awareness of the state of intersex rights in the UK.
Since this is an obscure topic, it’s first important to clarify what “Intersex” means for anyone who might not know. Intersexuality is an umbrella term for several developmental abnormalities, some genetic and some not, where the traits that make up physical sex are to some extent ambiguous at birth. Different medical and support organizations use varyingly strict definitions for the term; some only consider a very strict range of obviously serious conditions to be intersex, while others at the extreme opposite include hormonal disorders like PCOS under the umbrella. Regardless, even under the conservative definition, intersexuality is extremely varied, ranging from people with completely ambiguous genitalia and internal reproductive anatomy, or even ambiguous genotypical sex, to people who are basically physically normal and only have a condition visible under a microscope. You might be familiar with the term “Disorders (or differences) of Sexual Development” instead, which has recently become popular as a less identity-driven alternative label to “intersex” within some social and medical circles – the NHS started using it a few years ago, but it hasn’t caught on in the US – but this is controversial for a whole bunch of complicated reasons.
It’s worth taking a moment to note that intersexuality has nothing inherently to do with trans issues, though a much larger than average amount of intersex people are trans than the general population for reasons which are probably self-evident. Intersex people are also often caught up in legislation surrounding trans stuff, such as a lot of the “bathrooms are separated by chromosomes” legislation popping up in the US recently, but that’s not important here.
With all this said, I can now get to what I meant to the point of this post, which is that the UK has some of the [worst protections for intersex people in the western world.](https://en.wikipedia.org/wiki/Intersex_human_rights) And nobody talks about it!
Let’s break it down. Probably the most well-known medical controversy surrounding intersex people is the issue of surgical sexual assignment after birth. If you’re not familiar, from the 1960s onward, it became medically fashionable to surgically alter children born with ambiguous genitalia into one phenotypical sex or the other, often based entirely on the discretion of the doctor as to what would produce a “better result” cosmetically. Putting aside the fact that this irreversibly takes agency away from the child on a critical part of their life, often these radical procedures are done by surgeons inexperienced with genital surgery out of a desire to get it done as soon as possible to minimize interference in the child’s development and “normalize” the situation for the parents. The result is that nerve damage and long term cosmetic and functional problems with the area are extremely common. Because of my reassignment surgery, I’ve experienced numbness in parts of my junk for my whole life, and since my teens, routine chronic pain. It sucks.
Since the late 90s, there has been an increasing backlash to the practice, and it’s been banned in a bunch of places. But not here. Though less common, [the NHS continues to recommend and perform reassignment surgery.](https://www.buzzfeed.com/patrickstrudwick/how-many-intersex-children-being-operated-on) There was [talk](https://www.thetimes.co.uk/article/surgery-on-intersex-children-may-stop-p2p8qq5dc) of it being banned a couple years ago, but it seemingly fizzled out and went nowhere.
Hilariously, the government cares so little about this that they claimed the practice was dead back in 2016, only to be instantly countered by the data showing it’s still ongoing. To quote wikipedia’s article on UK intersex rights:
> A footnote to a House of Commons report on transgender equality in 2016 suggested that intersex medical interventions were matters of the past,[33] and the country denied such practices in statements to the UN Committee on the Rights of the Child later the same year.[34] However, this was belied by data presented to the UN Committee by intersex civil society organizations later in 2016, including National Health Service Hospital Episode Statistics and clinical publications.[35]
As far as I’m aware, it’s never even come up in the commons since.
Related to this, another unusual thing about the UK compared to many other countries is that there is no special process for changing your legal sex as an intersex person. If you are assigned based on a doctors discretion at birth – which is often a completely subjective judgement, and is not rooted in any strict criteria, genetic or physical or whatever – then that sex they chose for you is, legally speaking, treated identically to if the assignment had been done by mother nature. Your only choice from that point forward if you don’t like it is to go through the exact same psychological analysis and two-year test of commitment that all trans people go through to get a Gender Recognition Certificate. To reiterate, you have to be _psychologically analyzed_ to be allowed to disagree with a choice made _for_ you by another human being.
Granted, there are professionals in the country who are aware of how patently absurd the law is and will basically just wave you through, but it’s still garbage and entails a huge amount of bureaucracy and waiting.
Finally, and most egregiously, intersex people have no formal legal protection in the law anywhere in the UK except Jersey. If you are discriminated against, either for being visibly intersex or for something to do with your body, then you have no special rights in the way that women, disabled, gay, or trans people might. Which makes it far harder to fight legally. This is especially a problem in schools, where intersex people are sometimes locked out of PE completely because the staff don’t want to deal with the issue, with parents having no real way to fight back beyond just personally advocating for their kids.
Oh, and obviously intersex people don’t have the option of choosing to reflect their physical reality legally with a 3rd gender marker, but that almost feels like a _quaint_ complaint in comparison.
Obviously intersex people are a very small group of people and slip under the radar for that reason, but these are devastating issues for real people’s lives which could be easily fixed with legislature with no controversial consequences whatsoever. I’m not sure if I’m allowed to say “consider writing to your MP to raise awareness of the issue” in this sub, but, uh, yeah.
8 comments
Really interesting, how common are intersex births?
Regarding your comments on surgery, what is the view in the community or what are other countries doing, is the preference to not undergo surgery until the person can decide for themselves?
Given that Sex is a protected characteristic under the equality act, would this not apply to intersex discrimination
Fascinating. I didn’t know much of this. I knew that cosmetic modifications happened, but I had no idea they were primarily socially driven. I thought it was a functional thing, i.e. If you have only partially developed genitals it would affect your urethra and cause infection issues.
It does sound like much more needs to be done though.
Just one pedantic point I would pull you up on:
>To reiterate, you have to be psychologically analyzed to be allowed to disagree with a choice made for you by another human being.
Trans activists would no doubt make the argument that assigning a baby a gender at birth, even those with “normal” sexual development, is always “a choice made for you by another human being”. So any lighter approach to gender change, like self-declaration, should apply to everyone not just the biologically intersex.
I would be interested though to know if there’s a higher incidence of gender issues in intersex people as compared to the general population.
Thank you for this. I’ve been aware of a few of the issues you mention but not many, and obviously intersex has been overwhelmingly swamped by/conflated with trans issues.
If you know, I’d be interested to find out how many intersex people are there in the UK, and also whether intersex is detectable *in utero* to ensure appropriate paediatric care is available immediately after birth.
I’m really sorry to hear about the hardships you have faced.
These kinds of surgeries are wrong and urgently need to be stopped. And that the government thought they had is just absurd.
I had no idea intersex people had no legal protection from discrimination either. That is appalling.
We have a sub if people werent aware r/intersex . It’s mostly “hi I’ve just found out…” ” I have this/this thing happened when I was a kid… ” type posts but there’s also a bit of general discussion
Really interesting article about this by someone with CAIS:
[The Invention of Intersex](https://differently-normal.com/2021/10/25/the-invention-of-intersex/)
>Oh, and obviously intersex people don’t have the option of choosing to reflect their physical reality legally with a 3rd gender marker, but that almost feels like a quaint complaint in comparison.
Out of curiosity – is that a common request?
I (in a quite uninformed manner) assumed the complaint most intersex people would have is being forcibly assigned a gender at an early age and feeling it being the wrong one – I hadn’t really considered that people may actually want a recognised third intersex gender. I suppose I imagined it isn’t something people would generally want/be comfortable drawing attention to in anything but a medical setting.
I’m transgender and to get genital reassignment surgery I need:
* To be over the age of 18
* TWO diagnoses of gender dysphoria from a controlled list of gender experts
* TWO psychologists reports declaring me sound of mind
* TWO referrals for genital surgery from a controlled list of gender experts
* Proof that I have changed my name legally and have been living in my acquired gender for at least one year
* Proof that I have been on hormone replacement therapy (meeting certain criteria throughout the period) for at least one year OR an endocrinology report explaining why that criteria has not been met/giving recommendation on the matter
* NHS wait lists of well over 6 years in England OR £15,000 and wait lists of over 9 months for private patients
* Surgical recommendation based on medical factors
* 14 months of continuous electrolysis hair removal (obviously babies don’t have hair to remove though)
For an intersex child to have forced genital mutilation they require:
* A penis that is less than 2cm at birth (iirc, the numbers vary based on clinic/surgeon and change over time) OR otherwise ambiguous genitalia
It is a known fact that intersex people given genital mutilation at birth go on to have very poor medical outcomes. There is NO medical reason to mutilate a child’s genitals.
If an intersex child later desires corrective genital surgery, there is no downside to waiting. In fact, it means that surgeons who already work on adult transgender patients will be able to perform a higher quality operation which gives better patient outcomes.
It’s crazy that we have so many “transgender people regret surgery” and “think of the children!” types who are completely fine with intersex children going through the “horrors” that they’re trying to stop informed, consenting, evaluated adults from going through.