We are just 885 signatures away from bringing the petition to expand the existing pediatric oncology department in Luxembourg before the Chambre des Députés.
With dedicated infrastructure, some children battling cancer would be able to receive their treatments in Luxembourg under the care our our AMAZING pediatric oncology staff while still benefitting from the knowledge and expertise of larger cancer centres.
Our daughter was diagnosed with brain cancer in 2018 at the Kannerklinik. That night, we began a fight we couldn’t give up and couldn’t turn away from, even for a moment.
Having to travel to Paris every few weeks for chemotherapy was incredibly difficult. It was hard on our daughter, as her body became weaker and weaker due to the intensity of chemotherapy, it was hard on us as parents, and it was hard on our marriage and our humanity as we struggled to grasp onto optimism, faith, and the will to keep getting up each day trying to make life beautiful and magical for our child despite the darkness of her illness.
She is brave and clever. She learned to count while in isolation in a hospital room, counting the bags of chemotherapy and saline hanging from the IV pole.
She is fearless. She woke one Sunday morning in the kannerklinik with the stitches in her scalp leaking fluid. They just would not heal. The pediatrican on duty called the neurosurgeon on duty who arrived within minutes.
He explained to me they needed to redo the stitches in her head and we had no time for anesthesia.
I asked for the procedure to be done in a treatment room, not in her room, because I didn’t want her space to become a place of fear. They listened to me and respected what I asked for.
The nurses and pediatrician held her still. I stroked her face and sang Baby Beluga and forced myself not to cry, the neurosurgeon stitched. When it was over, he looked at me and thanked me for singing. I thanked him for being there for us. I held her in my arms while she cried and soothed her until her sunny smile came back.
She is a fighter and she is in remission now but she deserved better and I couldn’t give it to her then.
She deserved to be at home. To have visitors, when they were allowed, and to have the support of all the other people who love her standing by and cheering her on, bringing her meals when she could eat, and friendship when she could not.
So please, for Caroline, and all the children who come after her – sign our petition.
Anyone aged 15 and over with a Luxembourg matricule number can sign the petition (and validate the signature by email).
Please share the petition and considering sharing this post which is public on my personal profile.
We have incredible care here in Luxembourg – and we can do more for our children.
7 comments
Dear Redditors of Lux:
We are just 885 signatures away from bringing the petition to expand the existing pediatric oncology department in Luxembourg before the Chambre des Députés.
With dedicated infrastructure, some children battling cancer would be able to receive their treatments in Luxembourg under the care our our AMAZING pediatric oncology staff while still benefitting from the knowledge and expertise of larger cancer centres.
Our daughter was diagnosed with brain cancer in 2018 at the Kannerklinik. That night, we began a fight we couldn’t give up and couldn’t turn away from, even for a moment.
Having to travel to Paris every few weeks for chemotherapy was incredibly difficult. It was hard on our daughter, as her body became weaker and weaker due to the intensity of chemotherapy, it was hard on us as parents, and it was hard on our marriage and our humanity as we struggled to grasp onto optimism, faith, and the will to keep getting up each day trying to make life beautiful and magical for our child despite the darkness of her illness.
She is brave and clever. She learned to count while in isolation in a hospital room, counting the bags of chemotherapy and saline hanging from the IV pole.
She is fearless. She woke one Sunday morning in the kannerklinik with the stitches in her scalp leaking fluid. They just would not heal. The pediatrican on duty called the neurosurgeon on duty who arrived within minutes.
He explained to me they needed to redo the stitches in her head and we had no time for anesthesia.
I asked for the procedure to be done in a treatment room, not in her room, because I didn’t want her space to become a place of fear. They listened to me and respected what I asked for.
The nurses and pediatrician held her still. I stroked her face and sang Baby Beluga and forced myself not to cry, the neurosurgeon stitched. When it was over, he looked at me and thanked me for singing. I thanked him for being there for us. I held her in my arms while she cried and soothed her until her sunny smile came back.
She is a fighter and she is in remission now but she deserved better and I couldn’t give it to her then.
She deserved to be at home. To have visitors, when they were allowed, and to have the support of all the other people who love her standing by and cheering her on, bringing her meals when she could eat, and friendship when she could not.
So please, for Caroline, and all the children who come after her – sign our petition.
Anyone aged 15 and over with a Luxembourg matricule number can sign the petition (and validate the signature by email).
Please share the petition and considering sharing this post which is public on my personal profile.
We have incredible care here in Luxembourg – and we can do more for our children.
Thank you ♥️ 🇱🇺
https://www.petitiounen.lu/en/petition/2232
Signed and shared
More power to you, your family, and everything your post stands for. Signed.
Signed and shared! Courage and i hope you can go to the chambre and make them act!
Signed
Signed
Signed. All the best to you and your family.