Bruce Willis’ Wife Emma Heming Reveals “Hardest Decision” She’s Made Amid His Dementia Diagnosis

https://www.eonline.com/news/1421720/bruce-willis-living-separately-amid-dementia-battle

15 comments

  1. She has all the money she needs to properly care for him. Tired of hearing about her “struggle”. Tell it to the family that has to rely on Medicaid.

  2. > As the model continues to navigate Bruce Willis’ battle with frontotemporal dementia, known as FTD, she revealed that the Die Hard actor now lives with his round-the-clock caregivers, separately from his family.

    > “It was one of the hardest decisions that I’ve had to make so far,” Emma—who shares daughters Mabel Willis, 13, and Evelyn Willis, 11, with Bruce—explained in ABC’s Aug. 26 special Emma & Bruce Willis: The Unexpected Journey. “But I knew, first and foremost, Bruce would want that for our daughters. He would want them to be in a home that was more tailored to their needs, not his needs.”

    Saved you a click

  3. And if she didn’t talk about it . She would get crap about it . Regardless if they can afford it . It still so sad to see Bruce Willis having to go through this horrible disease .

  4. Agreed. Honor his memory by keeping these issues from the gossip mags. This just feels inappropriate.

  5. I’m so sad for her and for all his daughters, too. I am grateful that she’s willing to give a public face to caregiving.

  6. There are no good answers for dealing with dementia. Even if you’re lucky enough to have the financial resources, the reality of dementia sucks and nobody is prepared to deal with it. Each family has to decide what is best for them – for all of them. It sounds like he is a safe place with proper care. I hope his family can enjoy some sacred moments with him still and have memories that will sustain him in the dark times. Dementia sucks.

  7. What eventually happens (at least in a case I witnessed) FTD causes the person to forget how to swallow. Unless they are tubed they will starve/dehydrate. Choosing death with dignity before this point should be a legal option.

  8. I know why she needed to do this. It’s horribly sad. That is the way this disease goes.

  9. There is no rule that says she is required to talk about it publicly all the time.

  10. I forgot he had young kids. I really feel for them. I’m middle age and my LO has FTD.

    I know have downed her struggle because she has money and can afford 24/7 care but I feel for her. It’s very difficult on so many levels. I had people come in to help but was very involved in caretaking. It’s rough. It sounds like he may be in a facility which can have a stigma but really can be the best care option

  11. I feel like them running to the press every time there is some kind of change or update feels icky. We don’t need to know these details

  12. Putting a loved one into care is devastating, its so hard to do and the guilt that their partners feel is immense. I’m glad for her that she was able to make this decision, dementia is a brutal disease and caregiver burnout is real. She needs to be able to be a good mother to her children, which she can’t be if she’s being crushed under the burden of dementia care.

  13. My husband has FTD. He was diagnosed weeks before everything shut down during the pandemic. If I can be blunt, this shit fucking sucks.

    I’ve filled out the paperwork for an in home aide. I can’t do it alone anymore. And I’m young. And I’m pissed off that he doesn’t get to get old. And I’m sad my daughter will be walked down the aisle by me.

    I saw a bit of her interview on GMA and it’s all the same. I didn’t watch the interview. I just can’t. I’m in it.

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