There was talk of studies into ‘long covid’ hopefully producing some more understanding of ME/CFS but I don’t know if that has gone anywhere.
My partner has ME and trying to get any help for them feels impossible. The local gp reccomended graded exercise therapy, which luckily we both know is not actually helpful for patients. They had no other reccomendation. He is thirty. It feels like no one cares.
Honestly he’s lucky to even have w diagnosis. I’ve been trying for 10 years to get GPs to deal with my fatigue
i have FND and experienced symptoms similar to ME last summer. it’s truly horrendous, i would not be exaggerating to say it is torture. you have to limit your time sitting upright, opening your eyes, having the curtains open. i hope everyone who has it recovers some time soon.
i have FND and experienced symptoms similar to ME last summer. it’s truly horrendous, i would not be exaggerating to say it is torture. you have to limit your time sitting upright, opening your eyes, having the curtains open. i hope everyone who has it recovers some time soon.
i have FND and experienced symptoms similar to ME last summer. it’s truly horrendous, i would not be exaggerating to say it is torture. you have to limit your time sitting upright, opening your eyes, having the curtains open. i hope everyone who has it recovers some time soon.
I’ve given up entirely on the NHS. I got my diagnosis in 2016 and been practically abandoned by them and I gave up on my GP after they just threw painkillers at me like they were sweets. My condition is getting worse and I’m dreading the future, I have exactly medical 0 evidence of my condition other than the diagnosis, so PIP is absolutely out of reach for me if I ever need to turn to it. I’m fucked and have 0 hope for the future.
7 comments
There was talk of studies into ‘long covid’ hopefully producing some more understanding of ME/CFS but I don’t know if that has gone anywhere.
My partner has ME and trying to get any help for them feels impossible. The local gp reccomended graded exercise therapy, which luckily we both know is not actually helpful for patients. They had no other reccomendation. He is thirty. It feels like no one cares.
Honestly he’s lucky to even have w diagnosis. I’ve been trying for 10 years to get GPs to deal with my fatigue
i have FND and experienced symptoms similar to ME last summer. it’s truly horrendous, i would not be exaggerating to say it is torture. you have to limit your time sitting upright, opening your eyes, having the curtains open. i hope everyone who has it recovers some time soon.
i have FND and experienced symptoms similar to ME last summer. it’s truly horrendous, i would not be exaggerating to say it is torture. you have to limit your time sitting upright, opening your eyes, having the curtains open. i hope everyone who has it recovers some time soon.
i have FND and experienced symptoms similar to ME last summer. it’s truly horrendous, i would not be exaggerating to say it is torture. you have to limit your time sitting upright, opening your eyes, having the curtains open. i hope everyone who has it recovers some time soon.
I’ve given up entirely on the NHS. I got my diagnosis in 2016 and been practically abandoned by them and I gave up on my GP after they just threw painkillers at me like they were sweets. My condition is getting worse and I’m dreading the future, I have exactly medical 0 evidence of my condition other than the diagnosis, so PIP is absolutely out of reach for me if I ever need to turn to it. I’m fucked and have 0 hope for the future.