Yep, made it nearly 3 years before catching Covid, vaccinated, and got over it pretty quickly.
But, ever since, my body absolutely aches at times, always at least a bit of pain, and on bad days I can’t walk so much as painfully shuffle short distances. Plus the occasional brain fog day.
And I agree, I have it lightly. I can still function most of the time, and do my job, and leave the house most days.
But in terms of treatment, there doesn’t really seem to be any options other than painkillers. And every time I have several good days in a row, I start thinking that maybe I’m finally getting over it. And then I have a very bad day.
I don’t know what’s being investigated longer term, and I hope that more severe sufferers can get physical therapy etc to help them, but it is definitely a bit of a void at the moment regards treatment.
They have my sympathy but what do they want to do? I have a life long disease, I’m not worried about it being forgotten it is what it is. You live with what you’ve got.
As a long covid sufferer of 3 + years I don’t ‘feel’ forgotten, I AM forgotten.
No treatments, no attempt at treatments, the NHS long covid clinic told me I need ‘rest and time’ and refused to attempt any treatment even if I gave written consent.
I am also a ‘mild’ case (and I’ve still dealt with fatigue, histamine issues, skin issues, post exercise sickness, stomach problems, brain fog and a whole host of other problems).
There are plenty of long covid sufferers who are bed bound, I know a guy from my school who is, and my mum knows a 19 year old sufferer who is wheelchair bound.
Bear in mind anyone who catches covid, whether the first fine or forth time, vaccinated or not, can get long covid, we need treatments urgently and to filter air indoors so less people catch it in the first place.
Will never not be thankful and grateful to myself for taking a year off college to stay home
A Chinese engineered virus that acts like a landmine, maiming a population so they have to spend millions supporting these poor people long term.
You can bet in China they’re doing absolutely nothing for any long COVID sufferers. In China you are merely a statistic, and even those numbers get fudged.
Ok… but what are we supposed to do? Our population has been incredibly unhealthy for decades. Shit diet. Shit exercise. Shit weight management. I’m not saying long Covid isn’t real. I do think there are outliers. But I just can’t see this as something that people are claiming it is.
I still have no sense of smell. I never tested positive for COVID. But the vaccines have devestated me. Smell is vital for tasting food too. I just get very very weak flavours. It’s not taken seriously by health services. It doesn’t count as a disability either. But I know I’m not as badly off as many people.
Long Covid sufferers really are the worst for whining. What do they want us to do about it?
As a long term sufferer myself I feel it’s good we are getting some coverage again. I do not feel as productive in my job therefore would appreciate some financial support in perpetuity. An additional £1k a month would really help me. Pls spread the message.
It’s post viral infection syndrome, can cause all kinds of things from MS to hurty joints, they just renamed to give the idiots something to latch on to
As somebody with chronic conditions i fully understand but most people do not care, often even friends. Especially if they’re not immediately noticeable. It’s sad and help can generally be found if you seek it. But you have to crack on and carry on with life. You have no other choice, it’s that or dwelling in your own misery.
The lack of empathy for others suffering with long covid in this thread is astounding.
I recommend people look up ThePhysicsGirl who’s a well known science educator on YouTube, who caught covid last year and has gone from travelling the world to being unable to leave her bed, with her husband caring for her. Any stimulation can be detrimental to her health and cause her to relapse.
Long covid isn’t just minor aches & pains – it can be really debilitating.
Edit: I think those with long covid just want others to recognise their condition is real.
I recall that The Rest is Politics was talking about this. And it will still take some time to know how it affects people long-term. Likely most people in the UK will know a sufferer.
Just some acknowledgement would be nice and to be taken seriously. I’m a mild case sure but I can’t even get a doctor to it in writing so my employer acknowledges my issues.
Some days I’m absolutely fine and some days getting up is a struggle and everything feels 10x harder to do, I have no energy, brain fog, felt like I’ve got no hours sleep etc. And the quality of my work suffers for it. My boss, luckily, is fine with it and he understands when I say I need to go home but HR doesn’t accept it because its not written down. He can tell and tells me to go now if I’m having a “bad day”.
Every time I go to the GP they roll their eyes, tell me there’s tests I need doing and because it’s not every day its probably something else, book blood tests for me then send me on my way. Blpod tests dont show anything. I try not to waste their time or resources because I know they’re struggling right now but what can I do? Because it’s not an every day occurance they don’t want to deal with it. It’s maybe 2-3 days a month now. It used to be every day when I first started testing negative (Nov 2021).
The only permanent thing with now, other than bringing back my asthma with a fury, is that my sense of smell has changed. Some things are super strong for me now and I get phantom smells all the time. Other than that I can never know when I will have a bad day. There arent any signs.
Long Covid gets more attention than other invisible illnesses. I’ve been chronically ill for 6 years. I was discriminated against during the pandemic because of symptoms of my established Illness that nurses read as Covid symptoms even though I tested negative repeatedly. As far as I’m aware, I never had Covid 19 or its variants. I was turned away from appointments because of my pre-existing Illness, and now people are trying to conflate my condition with long Covid. I feel for those that have it, but I’m frankly sick of hearing about it.
And? Thousands live with debilitating conditions and diseases and most of them are largely forgotten too (unless someone famous happens to also have said condition/disease)
Welcome to having a chronic condition, you get on with it and no one cares.
They will have been found fit-for-work by the work capability assessment. They’ll be fine.
The government discarding the long term disabled… surely not. During the first year or two as long covid was becoming known those of us who know the joy of dealing with the DWP were shouting about this risk.
Ignoring long COVID is an unfortunate side effect of so many people choosing to ignore the lockdown and assume the rules just didn’t apply to them because they wanted to see friends, have a party (I know!), its just maximise as much normality as they could get away with.
If they didn’t think COVID was a problem when it was a problem, you’ll never convince them that long COVID is still a problem.
There are many literally crippling diseases we still don’t have effective treatments for much less a cure. MND, MS, Parkinson’s, etc etc.
Its but that people with them are forgotten, it’s just that there’s only so much research money available and so very many things that need researching.
Unfortunately for long COVID, it’s likely to be a highly transient problem. Once our generations die out, it’ll mostly be gone, whereas the other conditions will still be with the world. In terms of priority funding then, it’s not unreasonable that long COVID isn’t high on the list.
20 comments
Yep, made it nearly 3 years before catching Covid, vaccinated, and got over it pretty quickly.
But, ever since, my body absolutely aches at times, always at least a bit of pain, and on bad days I can’t walk so much as painfully shuffle short distances. Plus the occasional brain fog day.
And I agree, I have it lightly. I can still function most of the time, and do my job, and leave the house most days.
But in terms of treatment, there doesn’t really seem to be any options other than painkillers. And every time I have several good days in a row, I start thinking that maybe I’m finally getting over it. And then I have a very bad day.
I don’t know what’s being investigated longer term, and I hope that more severe sufferers can get physical therapy etc to help them, but it is definitely a bit of a void at the moment regards treatment.
They have my sympathy but what do they want to do? I have a life long disease, I’m not worried about it being forgotten it is what it is. You live with what you’ve got.
As a long covid sufferer of 3 + years I don’t ‘feel’ forgotten, I AM forgotten.
No treatments, no attempt at treatments, the NHS long covid clinic told me I need ‘rest and time’ and refused to attempt any treatment even if I gave written consent.
I am also a ‘mild’ case (and I’ve still dealt with fatigue, histamine issues, skin issues, post exercise sickness, stomach problems, brain fog and a whole host of other problems).
There are plenty of long covid sufferers who are bed bound, I know a guy from my school who is, and my mum knows a 19 year old sufferer who is wheelchair bound.
Bear in mind anyone who catches covid, whether the first fine or forth time, vaccinated or not, can get long covid, we need treatments urgently and to filter air indoors so less people catch it in the first place.
Will never not be thankful and grateful to myself for taking a year off college to stay home
A Chinese engineered virus that acts like a landmine, maiming a population so they have to spend millions supporting these poor people long term.
You can bet in China they’re doing absolutely nothing for any long COVID sufferers. In China you are merely a statistic, and even those numbers get fudged.
Ok… but what are we supposed to do? Our population has been incredibly unhealthy for decades. Shit diet. Shit exercise. Shit weight management. I’m not saying long Covid isn’t real. I do think there are outliers. But I just can’t see this as something that people are claiming it is.
I still have no sense of smell. I never tested positive for COVID. But the vaccines have devestated me. Smell is vital for tasting food too. I just get very very weak flavours. It’s not taken seriously by health services. It doesn’t count as a disability either. But I know I’m not as badly off as many people.
Long Covid sufferers really are the worst for whining. What do they want us to do about it?
As a long term sufferer myself I feel it’s good we are getting some coverage again. I do not feel as productive in my job therefore would appreciate some financial support in perpetuity. An additional £1k a month would really help me. Pls spread the message.
It’s post viral infection syndrome, can cause all kinds of things from MS to hurty joints, they just renamed to give the idiots something to latch on to
As somebody with chronic conditions i fully understand but most people do not care, often even friends. Especially if they’re not immediately noticeable. It’s sad and help can generally be found if you seek it. But you have to crack on and carry on with life. You have no other choice, it’s that or dwelling in your own misery.
The lack of empathy for others suffering with long covid in this thread is astounding.
I recommend people look up ThePhysicsGirl who’s a well known science educator on YouTube, who caught covid last year and has gone from travelling the world to being unable to leave her bed, with her husband caring for her. Any stimulation can be detrimental to her health and cause her to relapse.
Long covid isn’t just minor aches & pains – it can be really debilitating.
Edit: I think those with long covid just want others to recognise their condition is real.
I recall that The Rest is Politics was talking about this. And it will still take some time to know how it affects people long-term. Likely most people in the UK will know a sufferer.
Just some acknowledgement would be nice and to be taken seriously. I’m a mild case sure but I can’t even get a doctor to it in writing so my employer acknowledges my issues.
Some days I’m absolutely fine and some days getting up is a struggle and everything feels 10x harder to do, I have no energy, brain fog, felt like I’ve got no hours sleep etc. And the quality of my work suffers for it. My boss, luckily, is fine with it and he understands when I say I need to go home but HR doesn’t accept it because its not written down. He can tell and tells me to go now if I’m having a “bad day”.
Every time I go to the GP they roll their eyes, tell me there’s tests I need doing and because it’s not every day its probably something else, book blood tests for me then send me on my way. Blpod tests dont show anything. I try not to waste their time or resources because I know they’re struggling right now but what can I do? Because it’s not an every day occurance they don’t want to deal with it. It’s maybe 2-3 days a month now. It used to be every day when I first started testing negative (Nov 2021).
The only permanent thing with now, other than bringing back my asthma with a fury, is that my sense of smell has changed. Some things are super strong for me now and I get phantom smells all the time. Other than that I can never know when I will have a bad day. There arent any signs.
Long Covid gets more attention than other invisible illnesses. I’ve been chronically ill for 6 years. I was discriminated against during the pandemic because of symptoms of my established Illness that nurses read as Covid symptoms even though I tested negative repeatedly. As far as I’m aware, I never had Covid 19 or its variants. I was turned away from appointments because of my pre-existing Illness, and now people are trying to conflate my condition with long Covid. I feel for those that have it, but I’m frankly sick of hearing about it.
And? Thousands live with debilitating conditions and diseases and most of them are largely forgotten too (unless someone famous happens to also have said condition/disease)
Welcome to having a chronic condition, you get on with it and no one cares.
They will have been found fit-for-work by the work capability assessment. They’ll be fine.
The government discarding the long term disabled… surely not. During the first year or two as long covid was becoming known those of us who know the joy of dealing with the DWP were shouting about this risk.
Ignoring long COVID is an unfortunate side effect of so many people choosing to ignore the lockdown and assume the rules just didn’t apply to them because they wanted to see friends, have a party (I know!), its just maximise as much normality as they could get away with.
If they didn’t think COVID was a problem when it was a problem, you’ll never convince them that long COVID is still a problem.
There are many literally crippling diseases we still don’t have effective treatments for much less a cure. MND, MS, Parkinson’s, etc etc.
Its but that people with them are forgotten, it’s just that there’s only so much research money available and so very many things that need researching.
Unfortunately for long COVID, it’s likely to be a highly transient problem. Once our generations die out, it’ll mostly be gone, whereas the other conditions will still be with the world. In terms of priority funding then, it’s not unreasonable that long COVID isn’t high on the list.