{"id":216038,"date":"2025-06-30T16:08:13","date_gmt":"2025-06-30T16:08:13","guid":{"rendered":"https:\/\/www.europesays.com\/fr\/216038\/"},"modified":"2025-06-30T16:08:13","modified_gmt":"2025-06-30T16:08:13","slug":"le-patient-expert-jerome-defazio-recoit-lordre-national-du-merite-a-marseille","status":"publish","type":"post","link":"https:\/\/www.europesays.com\/fr\/216038\/","title":{"rendered":"Le \u00ab\u00a0patient-expert\u00a0\u00bb J\u00e9r\u00f4me Defazio re\u00e7oit l&rsquo;Ordre national du m\u00e9rite \u00e0 Marseille"},"content":{"rendered":"<p>J\u00e9r\u00f4me Defazio a re\u00e7u l\u2019Ordre national du m\u00e9rite, ce jeudi 26 juin <a href=\"https:\/\/www.laprovence.com\/article\/sante\/29292411353151\/francois-cremieux-directeur-de-lap-hm-l-ihu-de-marseille-doit-retrouver-sa-credibilite-scientifique\" target=\"_blank\" rel=\"nofollow noopener\">\u00e0 l\u2019IHU M\u00e9diterran\u00e9e infection<\/a>, dont il est \u00e9galement administrateur depuis\u00a02021.<\/p>\n<p>\u00c0 l\u2019\u00e2ge de 6\u00a0ans, il s\u2019\u00e9tait vu diagnostiquer une cystinurie, une maladie g\u00e9n\u00e9tique orpheline du rein. \u00ab\u00a0En\u00a01989, aucune information\u00a0n\u2019\u00e9tait disponible, aucun traitement approuv\u00e9\u00a0\u00bb, a-t-il rappel\u00e9 dans son discours.<\/p>\n<p>Une expertise mise au service des autres patients<\/p>\n<p>S\u2019ensuit un parcours du combattant dans lequel, entour\u00e9 de ses parents et de son fr\u00e8re, puis plus tard de son compagnon Fabrice, il fera deux rencontres d\u00e9terminantes\u00a0: le Docteur \u00c9lisabeth Caniot, n\u00e9phrologue \u00e0 La Timone Enfants, et <a href=\"https:\/\/www.laprovence.com\/article\/societe\/5765635\/video-un-reportage-exceptionnel-dune-greffe-de-rein-entre-un-pere-et-son-fils-a-marseille.html\" target=\"_blank\" rel=\"nofollow noopener\">le Pr \u00c9ric Lechevallier, pionnier en France<\/a> de l\u2019utilisation de \u00ab\u00a0l\u2019ur\u00e9t\u00e9roscope souple coupl\u00e9 au laser holmium\u00a0\u00bb, une technique qui \u00ab\u00a0a r\u00e9volutionn\u00e9 le traitement des calculs et bien d\u2019autres pathologies du syst\u00e8me urinaire\u00a0\u00bb.<\/p>\n<p>Habitu\u00e9 des couloirs hospitaliers en parall\u00e8le de son activit\u00e9 professionnelle \u00e0 la SNCF, J\u00e9r\u00f4me Defazio, 42\u00a0ans, a d\u00e9velopp\u00e9 une v\u00e9ritable expertise qu\u2019il a d\u00e9cid\u00e9 de mettre au service des autres patients. Avec d\u2019autres dipl\u00f4m\u00e9s du certificat d\u2019universit\u00e9 \u00ab\u00a0\u00c9ducation th\u00e9rapeutique &#8211; patients-experts\u00a0\u00bb d\u2019AMU, il a cr\u00e9\u00e9 en\u00a02020 l\u2019association Les Patients-experts. \u00ab\u00a0Des malades, qui mettent \u00e0 profit leur exp\u00e9rience pour aider d\u2019autres malades\u00a0\u00bb, a r\u00e9sum\u00e9 Louis Schweitzer, ancien PDG de Renault, <a href=\"https:\/\/www.laprovence.com\/actu\/en-direct\/6570204\/succession-de-didier-raoult-louis-schweitzer-a-la-tete-de-la-commission-de-selection.html\" target=\"_blank\" rel=\"nofollow noopener\">ex-pr\u00e9sident de la Halde et de l\u2019IHU<\/a>, lors de la remise des insignes.<\/p>\n<p>J\u00e9r\u00f4me Defazio pouvait conclure en citant fort \u00e0 propos S\u00e9n\u00e8que\u00a0: \u00ab\u00a0Vivre, ce n\u2019est pas attendre que l\u2019orage passe, c\u2019est apprendre \u00e0 danser sous la pluie.\u00a0\u00bb<\/p>\n","protected":false},"excerpt":{"rendered":"J\u00e9r\u00f4me Defazio a re\u00e7u l\u2019Ordre national du m\u00e9rite, ce jeudi 26 juin \u00e0 l\u2019IHU M\u00e9diterran\u00e9e infection, dont il&hellip;\n","protected":false},"author":2,"featured_media":216039,"comment_status":"","ping_status":"","sticky":false,"template":"","format":"standard","meta":{"footnotes":""},"categories":[2814],"tags":[17,1111,11,35543,1777,674,1011,27,9806,35544,884,35545,3238,12,35542,882,15397,16,25],"class_list":{"0":"post-216038","1":"post","2":"type-post","3":"status-publish","4":"format-standard","5":"has-post-thumbnail","7":"category-marseille","8":"tag-17","9":"tag-actu","10":"tag-actualites","11":"tag-defazio","12":"tag-eu","13":"tag-europe","14":"tag-fr","15":"tag-france","16":"tag-jerome","17":"tag-lordre","18":"tag-marseille","19":"tag-merite","20":"tag-national","21":"tag-news","22":"tag-patient-expert","23":"tag-provence-alpes-cote-dazur","24":"tag-recoit","25":"tag-region","26":"tag-republique-francaise"},"share_on_mastodon":{"url":"https:\/\/pubeurope.com\/@fr\/114773184005484626","error":""},"_links":{"self":[{"href":"https:\/\/www.europesays.com\/fr\/wp-json\/wp\/v2\/posts\/216038","targetHints":{"allow":["GET"]}}],"collection":[{"href":"https:\/\/www.europesays.com\/fr\/wp-json\/wp\/v2\/posts"}],"about":[{"href":"https:\/\/www.europesays.com\/fr\/wp-json\/wp\/v2\/types\/post"}],"author":[{"embeddable":true,"href":"https:\/\/www.europesays.com\/fr\/wp-json\/wp\/v2\/users\/2"}],"replies":[{"embeddable":true,"href":"https:\/\/www.europesays.com\/fr\/wp-json\/wp\/v2\/comments?post=216038"}],"version-history":[{"count":0,"href":"https:\/\/www.europesays.com\/fr\/wp-json\/wp\/v2\/posts\/216038\/revisions"}],"wp:featuredmedia":[{"embeddable":true,"href":"https:\/\/www.europesays.com\/fr\/wp-json\/wp\/v2\/media\/216039"}],"wp:attachment":[{"href":"https:\/\/www.europesays.com\/fr\/wp-json\/wp\/v2\/media?parent=216038"}],"wp:term":[{"taxonomy":"category","embeddable":true,"href":"https:\/\/www.europesays.com\/fr\/wp-json\/wp\/v2\/categories?post=216038"},{"taxonomy":"post_tag","embeddable":true,"href":"https:\/\/www.europesays.com\/fr\/wp-json\/wp\/v2\/tags?post=216038"}],"curies":[{"name":"wp","href":"https:\/\/api.w.org\/{rel}","templated":true}]}}