‘The system is cruel’ – parents watch son (9) lose mobility while access to vital drug remains out of reach

Aaron Langan was diagnosed with Duchenne muscular dystrophy when he was just 18 months old

Aaron (9) with muscle wasting disease is running out of time to get treatment to slow his decline

The parents of a nine-year-old boy with a rare muscle-wasting disease have said they are running out of time to secure a drug to slow down the decline in their son’s mobility.

Aaron Langan, from Laghey, Donegal, is one of around 150 children in Ireland with Duchenne muscular dystrophy (DMD), an incurable genetic condition that causes the muscles to slowly stop working.