Amanda Nugent, from Wexford, suffers from the rare skin condition epidermolysis bullosa (EB)
Amanda Nugent with her son Ruaidhri at home in Wexford, says that because of her type of EB, she is unable to access medical cards, long-term illness or Disability Benefit. Photo: Elle Nugent Traynor
A mother who suffers from the severe condition known as “butterfly skin” says she feels “invisible to the State” and struggles to go to work even on days when she can barely stand.
Amanda Nugent (47), from Newbawn, Co Wexford, suffers from epidermolysis bullosa (EB), a rare condition that causes the skin to tear and blister at the slightest touch.