‘We have six months to save our daughter’s life before childhood dementia robs her of her future’
Six months ago, Emily Forrester had no idea that behind her daughter Leni’s bright, infectious smile lay a…
Mother whose non-verbal daughter was born with rare genetic disorder says future is ‘too heart-wrenching’ to think about
A mother whose daughter was born with a rare chromosome disorder meaning she is non-verbal and has scoliosis…
Doctors left baffled by Grantham toddler’s ‘mystery’ genetic condition
A Lincolnshire family has been left waiting for answers after their toddler was diagnosed with an unknown condition…
Family of baby with rare genetic condition on ‘the day our world shattered’
THE family of a baby girl have spoken of their “heartbreak and devastation” after she was diagnosed with…