Genetic testing isn’t common in adults. Research shows it should be
Philadelphia (tca/dpa) – The first time the seemingly healthy woman gave birth, she went into heart failure. She…
Identity development and adaptation in adolescents with genetic conditions: a qualitatively oriented mixed-methods study to develop strategies for optimizing clinical genetics services | Orphanet Journal of Rare Diseases
Participant demographics Eighteen participants completed the PAS and IIQ surveys and participated in interviews. Table 1 lists participant…