{"id":40228,"date":"2025-09-03T05:58:08","date_gmt":"2025-09-03T05:58:08","guid":{"rendered":"https:\/\/www.europesays.com\/ie\/40228\/"},"modified":"2025-09-03T05:58:08","modified_gmt":"2025-09-03T05:58:08","slug":"wicklow-baby-boy-1-diagnosed-with-extremely-rare-gene-disorder","status":"publish","type":"post","link":"https:\/\/www.europesays.com\/ie\/40228\/","title":{"rendered":"Wicklow baby boy (1) diagnosed with extremely rare gene disorder"},"content":{"rendered":"<p class=\"indo-ebe0ecc6_root indo-ebe0ecc6_paragraph indo-91174671_secondary indo-1d70522a_marginbottom4 indo-1d70522a_marginleft0 indo-1d70522a_marginright0 indo-1d70522a_margintop4\" style=\"color:var(--color-primary-80)\" data-testid=\"title-summary\">Baby Eoin is only child in Ireland with the debilitating disorder and his family have launched an appeal to help him, and others that are impact by the disease\n<\/p>\n<p><img decoding=\"async\" alt=\"Eoin Webb. \" src=\"https:\/\/www.europesays.com\/ie\/wp-content\/uploads\/2025\/09\/40606231-2355-4a0a-a333-b4c14ef2a439.jpg\" loading=\"eager\" width=\"100%\" data-testid=\"article-image\"  \/><\/p>\n<p class=\"indo-ebe0ecc6_root indo-ebe0ecc6_caption1 indo-300db776_none indo-91174671_secondary indo-66f0fec7_regular indo-1d70522a_marginbottom0 indo-1d70522a_marginleft0 indo-1d70522a_marginright0 indo-1d70522a_margintop3 indo-b48c4984_left\" style=\"color:var(--color-grey-60)\">Eoin Webb. <\/p>\n<p class=\"indo-ebe0ecc6_root indo-ebe0ecc6_paragraph indo-300db776_none indo-91174671_primary indo-1d70522a_marginbottom0 indo-1d70522a_margintop0 indo-b48c4984_inherit\" style=\"color:var(--color-primary-80)\">The family of a little boy from Greystones, who is the only known child in Ireland living with a rare genetic mutation, have made an appeal for people to take part in a special event to raise funds and awareness for him and those impacted by the same disease.<\/p>\n<p class=\"indo-ebe0ecc6_root indo-ebe0ecc6_paragraph indo-300db776_none indo-91174671_primary indo-1d70522a_marginbottom0 indo-1d70522a_margintop0 indo-b48c4984_inherit\" style=\"color:var(--color-primary-80)\">Eoin Webb recently turned one and is the youngest of three boys, Ruairi (8) and Cormac (7), with mum and dad, Paul and Maria. Eoin was born full term and healthy, but in the early weeks he struggled with feeding and lost more than 10pc of his bodyweight. With help from a lactation consultant, the family discovered he was tongue-tied.<\/p>\n","protected":false},"excerpt":{"rendered":"Baby Eoin is only child in Ireland with the debilitating disorder and his family have launched an appeal&hellip;\n","protected":false},"author":2,"featured_media":40229,"comment_status":"","ping_status":"","sticky":false,"template":"","format":"standard","meta":{"footnotes":""},"categories":[78],"tags":[18,135,19,17,9273],"class_list":{"0":"post-40228","1":"post","2":"type-post","3":"status-publish","4":"format-standard","5":"has-post-thumbnail","7":"category-health","8":"tag-eire","9":"tag-health","10":"tag-ie","11":"tag-ireland","12":"tag-tom-galvin"},"share_on_mastodon":{"url":"","error":""},"_links":{"self":[{"href":"https:\/\/www.europesays.com\/ie\/wp-json\/wp\/v2\/posts\/40228","targetHints":{"allow":["GET"]}}],"collection":[{"href":"https:\/\/www.europesays.com\/ie\/wp-json\/wp\/v2\/posts"}],"about":[{"href":"https:\/\/www.europesays.com\/ie\/wp-json\/wp\/v2\/types\/post"}],"author":[{"embeddable":true,"href":"https:\/\/www.europesays.com\/ie\/wp-json\/wp\/v2\/users\/2"}],"replies":[{"embeddable":true,"href":"https:\/\/www.europesays.com\/ie\/wp-json\/wp\/v2\/comments?post=40228"}],"version-history":[{"count":0,"href":"https:\/\/www.europesays.com\/ie\/wp-json\/wp\/v2\/posts\/40228\/revisions"}],"wp:featuredmedia":[{"embeddable":true,"href":"https:\/\/www.europesays.com\/ie\/wp-json\/wp\/v2\/media\/40229"}],"wp:attachment":[{"href":"https:\/\/www.europesays.com\/ie\/wp-json\/wp\/v2\/media?parent=40228"}],"wp:term":[{"taxonomy":"category","embeddable":true,"href":"https:\/\/www.europesays.com\/ie\/wp-json\/wp\/v2\/categories?post=40228"},{"taxonomy":"post_tag","embeddable":true,"href":"https:\/\/www.europesays.com\/ie\/wp-json\/wp\/v2\/tags?post=40228"}],"curies":[{"name":"wp","href":"https:\/\/api.w.org\/{rel}","templated":true}]}}