{"id":520516,"date":"2026-06-05T18:26:19","date_gmt":"2026-06-05T18:26:19","guid":{"rendered":"https:\/\/www.europesays.com\/ie\/520516\/"},"modified":"2026-06-05T18:26:19","modified_gmt":"2026-06-05T18:26:19","slug":"midlands-td-calls-for-public-access-to-rare-disease-treatment","status":"publish","type":"post","link":"https:\/\/www.europesays.com\/ie\/520516\/","title":{"rendered":"Midlands TD Calls For Public Access To Rare Disease Treatment"},"content":{"rendered":"

\n Thursday, 4 June 2026 16:08\n <\/p>\n

\n By Liam White\n <\/p>\n

\"\"\/<\/p>\n

\n Skyclarys is the first approved therapy demonstrated to slow disease progression.\n <\/p>\n

A Midlands TD is calling for advances in treatment for a rare disease to be made publicly accessible.<\/p>\n

In Ireland, about 200 people have Friedreich\u2019s ataxia, a rare inherited disorder that progressively affects the spinal cord and nerves, causing worsening coordination and hearing problems.<\/p>\n

Skyclarys is the first approved treatment shown to slow progression, with some doctors reporting up to a 50% reduction in its rate.<\/p>\n

The drug was approved in Europe in February 2024, and is already reimbursed in Spain, France, and Italy.<\/p>\n

Longford Westmeath TD Miche\u00e1l Carrigy says he wants progress to be made as soon as possible:<\/p>\n

\n\u00a0<\/p>\n","protected":false},"excerpt":{"rendered":"Thursday, 4 June 2026 16:08 By Liam White Skyclarys is the first approved therapy demonstrated to slow disease…\n","protected":false},"author":2,"featured_media":520517,"comment_status":"","ping_status":"","sticky":false,"template":"","format":"standard","meta":{"footnotes":"","_share_on_mastodon":"0"},"categories":[41],"tags":[9,10,19870,19869,13,14,6,19872,11763,11,12,3136,19868,15,16,3172,19867,5,3171,5485,7,8,19871,65,66,67],"class_list":["post-520516","post","type-post","status-publish","format-standard","has-post-thumbnail","category-world","tag-breaking-news","tag-breakingnews","tag-broadcast","tag-broadcasting","tag-featured-news","tag-featurednews","tag-headlines","tag-irish-news","tag-laois","tag-latest-news","tag-latestnews","tag-local-news","tag-local-radio","tag-main-news","tag-mainnews","tag-midlands","tag-midlands-103","tag-news","tag-offaly","tag-radio","tag-top-stories","tag-topstories","tag-westmeath","tag-world","tag-world-news","tag-worldnews"],"share_on_mastodon":{"url":"https:\/\/pubeurope.com\/@ie\/116698912636637009","error":""},"_links":{"self":[{"href":"https:\/\/www.europesays.com\/ie\/wp-json\/wp\/v2\/posts\/520516","targetHints":{"allow":["GET"]}}],"collection":[{"href":"https:\/\/www.europesays.com\/ie\/wp-json\/wp\/v2\/posts"}],"about":[{"href":"https:\/\/www.europesays.com\/ie\/wp-json\/wp\/v2\/types\/post"}],"author":[{"embeddable":true,"href":"https:\/\/www.europesays.com\/ie\/wp-json\/wp\/v2\/users\/2"}],"replies":[{"embeddable":true,"href":"https:\/\/www.europesays.com\/ie\/wp-json\/wp\/v2\/comments?post=520516"}],"version-history":[{"count":0,"href":"https:\/\/www.europesays.com\/ie\/wp-json\/wp\/v2\/posts\/520516\/revisions"}],"wp:featuredmedia":[{"embeddable":true,"href":"https:\/\/www.europesays.com\/ie\/wp-json\/wp\/v2\/media\/520517"}],"wp:attachment":[{"href":"https:\/\/www.europesays.com\/ie\/wp-json\/wp\/v2\/media?parent=520516"}],"wp:term":[{"taxonomy":"category","embeddable":true,"href":"https:\/\/www.europesays.com\/ie\/wp-json\/wp\/v2\/categories?post=520516"},{"taxonomy":"post_tag","embeddable":true,"href":"https:\/\/www.europesays.com\/ie\/wp-json\/wp\/v2\/tags?post=520516"}],"curies":[{"name":"wp","href":"https:\/\/api.w.org\/{rel}","templated":true}]}}