A spokesperson for Belfast Trust apologised to patients, saying said it was “not in a position” to offer the treatment.
The spokesperson said a multi-disciplinary team approach is adopted for patients with Duchenne Muscular Dystrophy which includes physiotherapists, neurology, cardiology and respiratory specialists as well as endocrine specialists.
When asked why their costing was higher than Oxford University Hospitals Trust, a spokesperson said: “It is not possible for the Belfast Trust to comment on costs associated with service delivery within another organisation as individual providers will have different infrastructure and staffing levels in place.”
A statement from the charity Duchenne UK said patients in Northern Ireland are losing out to a “cruel postcode lottery”.
“The estimated cost that Belfast Trust has produced seems high and does not align with any other figures we have seen from other places.”