“He was born, I gave birth to him and there was nothing to recognise that he existed – he was a baby – but he was born two weeks before the cut off,” she told BBC News NI.
The family was able to bring him home for five days.
“The lack of recognition impacts your grief. I had so much anger that our baby was not recognised. You just want their name and story told.
“The only certificate we have for Jacob is a cremation certificate.”
Leah hopes the certificate will be a step towards the issue being more openly spoken about.
“Sometimes such losses are overlooked because people haven’t met the baby or know the baby – but you know the baby.
“It’s a much longed for, loved baby already.”
Chatting to other mums in a group set up by Lurgan-based charity Little Forget Me Nots Trust, external has helped.
“Speaking to people who resonate with me and just know exactly how you feel has been amazing,” she said.
Mylah has benefitted from their programme for siblings.
“She was struggling with the fact that everyone in school had brothers and sisters and she didn’t know how to mention her brother.”