Leanne Ralls is now campaigning to raise awareness of the condition that claimed her son’s life, saying: ‘I don’t want any other parent experiencing what I have gone through’
Riley Jay Sheen(Image: Leanne Ralls)
Riley Jay Sheen had been poorly with what appeared to be relatively harmless cold or flu symptoms. His mum Leanne Ralls said: “He’d had flu-like symptoms and a chest infection. He was on antibiotics and steroids, but nothing was helping him to get better.”
Then, in a devastating turn of events little Riley from Merthyr Tydfil suddenly died on September 13, 2024, with his funeral going ahead on what should have been his seventh birthday. Leanne said it wasn’t until months later when they discovered his cause of death was myocarditis caused by a simple infection.
The condition refers to inflammation of the heart, which can be caused by viral or bacterial infections among other triggers.
Most people will recover without any lasting effects, but the condition can be fatal, according to the British Heart Foundation (BHF).
Leanne, 30, said she hoped sharing what happened to her son would raise some much needed awareness. Stay informed on everything Merthyr Tydfil by signing up to our newsletter here
“I don’t want any other parent experiencing what I have gone through,” she said. “I want to raise awareness to open up people’s minds about the condition.”
Leanne wants to raise awareness of myocarditis(Image: Leanne Ralls)
Describing how her family’s nightmare began, Leanne said: “He’d been poorly for a few weeks, but he was fine in himself other than that.
“He had also been a bit breathless, but that is a symptom of the condition he was born with: Pierre Robyn syndrome and short long bones. He had always been breathless because of his condition.
“Because his chest infection wasn’t improving he had a hospital appointment coming up in November, but obviously it was too late.”
On September 13, 2024, Leanne said Riley complained of pain in his tummy area, but seemed fine after a nap.
She said: “He complained of a really bad belly in the morning, he was screaming and crying in pain. I thought it was his belly but it was his chest.
“I kept him off school and gave him Calpol and he had a nap and he was absolutely fine after that
“I took him to his nan’s and he was playing football with my dad, he was fab.
“I took him to the shop for sweets and when we got home he said he’s going to chill in his bedroom, which he usually did.”
Riley passed away unexpectedly(Image: Supplied by Leanne Ralls)
Heartbreakingly Leanne said that when she went to call Riley for his dinner later that day she found him unresponsive.
“When I went upstairs to get him for his food he was just gone,” she said. “I wasn’t expecting it at all. He just got taken away from me.”
Since that horrific day Leanne said she had been really struggling.
Paying tribute to Riley she said: “He was my whole world and I have been really struggling, life just hasn’t been the same.
“He was my loudest child and he was so bubbly.
“The house is quiet and I am really struggling. I am so glad I have his brothers because if I didn’t it would be even harder for me.
“He had such an outgoing personality, he was a really chatty little boy, he would talk to anyone.
“He loved dancing and swimming.
“This used to be our favourite time of year, but I can already feel my mood changing. It’s terrible.”
Since Riley’s death Leanne has learnt all about the condition. She said Riley had been showing some symptoms of myocarditis but that these symptoms did not clearly suggest that something was seriously wrong.
She said: “Symptoms can include shortness of breath, slurred speech and peeing yourself (in children). He was having all of these but I never thought it would be a heart condition.”
Symptoms of myocarditis
People with myocarditis can get chest pain and feel breathless, according to the BHF. It’s not unusual for these symptoms to start up to two weeks after being unwell with an infection.
Common symptoms of myocarditis according to the BHF include:
- chest pain or discomfort, or a feeling of tightness in the chest
- shortness of breath, either at rest or when active, or in certain positions, such as lying down
- unusual tiredness
- palpitations (like your heart is fluttering, racing, or pounding)
- an irregular heartbeat
- feeling light-headed or fainting
- flu-like symptoms such as high temperature, headaches, body aches, joint pain, or sore throat
- rarely, swelling in hands, legs, ankles or feet.
Some people have no symptoms, and their myocarditis may be picked up as part of a routine health appointment.
If you think you have symptoms of myocarditis, contact your doctor straightaway, or call NHS 111.
Getting diagnosed and treated early can help you feel better and lower your risk of long-term complications.
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