“I found the whole incident with the cadaver bone utterly shocking, really sickening,” the mother said.
“When my daughter and I were in a meeting where we found out the second bone graft had also failed, the way the surgeon looked when she was looking through the medical notes was really concerning, she looked horrified.
“I had to ask what was going on, and when she told me, I was utterly shocked.
“My daughter was there so I didn’t want to react too much, but I was furious, sickened, I just couldn’t believe it.
“We had not given consent for this, we knew nothing about it.”
She said the experience had shattered her confidence in a service she once trusted.
“From what was a fantastic service, which supported me so well from when I found out during my first pregnancy that my baby would be born with a cleft palate, there are now clearly really big problems,” she said.
“It doesn’t feel like it’s a really specialist service any more, and you find yourself seeing medical professionals who can’t answer your questions, they can’t give you the level of advice you used to rely on and trust.”