Severe mental health problems toook their toll on Sian Marsden, but now she’s using her experiences to help shape care services in Greater Manchester
Sian Marsden, 25, has become a ‘lived experience’ representative for a mental health trust
She was a succesful teenager, running a hair salon by the time she was 18.
But it all came crashing down for Sian Marsden when her mental health took a plunge.
The overwhelming nature of her job, coupled with personal struggles, led to a severe mental health crisis.
“I felt like a walking zombie and completely dissociated with reality to protect myself and cope”, she said.
The teen, from Tameside, was facing numerous obstacles at the time, including a disruptive home and school life.
“I became so paranoid that I found myself unable to open curtains or leave my home, through fear that someone was watching me,” she told the Local Democracy Service.
“I was on so much medication that my mind was all over the place”, she explained.
She faced multiple issues, including post-traumatic stress disorder, anxiety, emotionally-unstable personality disorder, body dysmorphia and psychosis.
Sian, now 25, from Hadfield, decided she needed more support. Things couldn’t continue the way they were going.
Sian was referred to the Tameside community mental health team.
And the help was transformational.
She praised the adjustments they made to support her through her darkest times.
“There were some days I couldn’t even leave my bedroom, but they understood my feelings,” she said.
“They came to my house and would sit at my bedroom door to talk to me.“We would have our sessions while on a walk or having a cup of coffee, and I really felt like they adapted to my needs. Nothing was too much trouble.”
Help and support
Samaritans (116 123) samaritans.org operates a 24-hour service available every day of the year. If you prefer to write down how you’re feeling, or if you’re worried about being overheard on the phone, you can email Samaritans at jo@samaritans.org, write to Freepost SAMARITANS LETTERS (no more information needed) and visit www.samaritans.org/branches to find your nearest branch.
For support for people feeling suicidal, if you are concerned about someone or if you are bereaved by suicide see http://shiningalightonsuicide.org.uk
CALM (0800 58 58 58) thecalmzone.net has a helpline is for men who are down or have hit a wall for any reason, who need to talk or find information and support. They’re open 5pm to midnight, 365 days a year.
Greater Manchester Bereavement Service Greater Manchester Bereavement Service can help to find support for anyone in Greater Manchester that has been bereaved or affected by a death. No one needs to feel alone as they deal with their grief. www.greater-manchester-bereavement-service.org.uk
Childline (0800 1111 ) runs a helpline for children and young people in the UK. Calls are free and the number won’t show up on your phone bill.
PAPYRUS (0800 068 41 41) is a voluntary organisation supporting teenagers and young adults who are feeling suicidal.
Beat Eating Disorders: Beat provides helplines for adults and young people offering support and information about eating disorders. These helplines are free to call from all phones. Adult Helpline: 0808 801 0677, Studentline: 0808 801 0811, Youthline: 0808 801 0711. www.beateatingdisorders.org.uk
Anorexia & Bulimia Care: ABC provide on-going care, emotional support and practical guidance for anyone affected by eating disorders, those struggling personally and parents, families and friends. Helpline: 03000 11 12 13. www.anorexiabulimiacare.org.uk/
Students Against Depression is a website for students who are depressed, have a low mood or are having suicidal thoughts. Bullying UK is a website for both children and adults affected by bullying studentsagainstdepression.org
For information and links to charities and organisations that can help with substance abuse, visit https://www.supportline.org.uk/problems/drugs/
Sian also received her official diagnosis while under the team, something that brought her clarity and validation. She said: “My final puzzle piece fell into place, and I could finally understand and make sense of my mind.
“It was such a relief to be able to hear the words, and to be referred for the specific treatment I needed,” she said.
As well as mental health support, the team noticed how Sian’s living situation was having a negative impact on her recovery.
They supported her to find and secure a new home, where she could have her own space. Sian had a new sense of independence and positive outlook on her future.
Sian has co-interviewed potential new staff at the trust (Image: ASP)
She said: “The support I received from the community team and during a short stay as a patient on a mental health ward definitely saved my life.
“I was inspired to help others and make a real difference in my local area.”
Working closely with Tameside and Glossop involvement team, part of Pennine Care NHS Foundation Trust, Sian is now making a significant impact on local mental health services by sharing her insight and experiences.
Sian heard about Tameside involvement team through her support workers and was intrigued by the idea of using her voice to make positive change to services.
Sian has supported the team to review website content, team workbooks and training, with a focus on making sure patient care is at the heart of everything.
She’s written a guest edition of the community mental health team’s newsletter to encourage others to come forward. And she has also supported recruitment by co-interviewing new staff.
“As someone who has lived experience of inpatient and community mental health services, I feel I can bring lots of value to the table”, Sian said.
“It’s great to have an outlet where you can be honest and offer your opinion on how things could change for the better.”
Rob Baker, Pennine Care’s assistant involvement co-ordinator added: “Working in partnership with people with lived experience is crucial for mental health services.
“One of our ambitions is listening to improve, demonstrating how passionate we feel about it.
“People like Sian offer unique insights that professionals might miss and they help identify service gaps and suggest practical improvements.
“It supports us to be more effective and patient-focused, so we can better meet the needs of those we serve.”
When asked about her message to people who have not yet sought help, Sian said: “The mind is dangerous and being in your own head is the worst place you can possibly be. It’s so important to talk to people and tell them what’s going on.
“I felt stupid and thought I would be judged, but once I spoke up it took the weight off my shoulders.
“The hardest step is always the first, but once it’s done you’ll find it’s the best thing you’ve ever done. I now have my own voice and control of my life.
“One day you’ll thank yourself for never giving up.”