The Progressive Supranuclear Palsy Association (PSPA), which supports individuals living with progressive supranuclear palsy (PSP) and corticobasal degeneration (CBD), has called on the Government to urgently review the NHS CHC system.
The charity’s new report highlights how people are being denied essential care packages, forcing many to self-fund their care.
PSP and CBD are chronic, progressive conditions requiring round-the-clock medical and personal care.
The charity is concerned that thousands of individuals with these conditions, who should be eligible for NHS-funded care packages, are being rejected, like Barry Capp from West Moors, who was diagnosed with PSP in 2021.
His wife, Janet, said: “When Barry was in hospital they told me he couldn’t return home.
“His eyes were fixed, he could no longer speak and that he was a very poorly man.
“They said that we would have to start looking at nursing homes and it would have to be self-funded.”
The PSPA is particularly concerned about the increasing evidence of a postcode lottery, with people in some parts of England being up to seven times less likely to receive CHC funding than others.