{"id":111626,"date":"2025-05-18T12:00:08","date_gmt":"2025-05-18T12:00:08","guid":{"rendered":"https:\/\/www.europesays.com\/uk\/111626\/"},"modified":"2025-05-18T12:00:08","modified_gmt":"2025-05-18T12:00:08","slug":"coventry-mums-relief-over-brutally-unfair-drug-access","status":"publish","type":"post","link":"https:\/\/www.europesays.com\/uk\/111626\/","title":{"rendered":"Coventry mum&#8217;s relief over &#8216;brutally unfair&#8217; drug access"},"content":{"rendered":"<p class=\"ssrcss-1q0x1qg-Paragraph e1jhz7w10\">She said getting the drug on the NHS had been &#8220;absolutely monumental&#8221; for Flory, and she believed her daughter was still walking, climbing and eating thanks to it. <\/p>\n<p class=\"ssrcss-1q0x1qg-Paragraph e1jhz7w10\">&#8220;To know that she&#8217;s going to have access to this indefinitely&#8230; is everything,&#8221; she said. <\/p>\n<p class=\"ssrcss-1q0x1qg-Paragraph e1jhz7w10\">&#8220;This treatment completely changes the trajectory of her life. Before, her entire life was uncertain.&#8221; <\/p>\n<p class=\"ssrcss-1q0x1qg-Paragraph e1jhz7w10\">But while it is a massive relief for her family, she is determined to keep advocating for others. <\/p>\n<p class=\"ssrcss-1q0x1qg-Paragraph e1jhz7w10\">Phoebe urged decision makers to do the right thing, adding they were &#8220;halfway there&#8221;. <\/p>\n<p class=\"ssrcss-1q0x1qg-Paragraph e1jhz7w10\">&#8220;Every child should be able to access this treatment,&#8221; she said. <\/p>\n<p class=\"ssrcss-1q0x1qg-Paragraph e1jhz7w10\">&#8220;It is is life-changing. To offer it some and not others seems brutally unfair.&#8221; <\/p>\n","protected":false},"excerpt":{"rendered":"She said getting the drug on the NHS had been &#8220;absolutely monumental&#8221; for Flory, and she believed her&hellip;\n","protected":false},"author":2,"featured_media":111627,"comment_status":"","ping_status":"","sticky":false,"template":"","format":"standard","meta":{"footnotes":""},"categories":[4315],"tags":[105,4326,16,15],"class_list":{"0":"post-111626","1":"post","2":"type-post","3":"status-publish","4":"format-standard","5":"has-post-thumbnail","7":"category-medication","8":"tag-health","9":"tag-medication","10":"tag-uk","11":"tag-united-kingdom"},"share_on_mastodon":{"url":"https:\/\/pubeurope.com\/@uk\/114528729502533370","error":""},"_links":{"self":[{"href":"https:\/\/www.europesays.com\/uk\/wp-json\/wp\/v2\/posts\/111626","targetHints":{"allow":["GET"]}}],"collection":[{"href":"https:\/\/www.europesays.com\/uk\/wp-json\/wp\/v2\/posts"}],"about":[{"href":"https:\/\/www.europesays.com\/uk\/wp-json\/wp\/v2\/types\/post"}],"author":[{"embeddable":true,"href":"https:\/\/www.europesays.com\/uk\/wp-json\/wp\/v2\/users\/2"}],"replies":[{"embeddable":true,"href":"https:\/\/www.europesays.com\/uk\/wp-json\/wp\/v2\/comments?post=111626"}],"version-history":[{"count":0,"href":"https:\/\/www.europesays.com\/uk\/wp-json\/wp\/v2\/posts\/111626\/revisions"}],"wp:featuredmedia":[{"embeddable":true,"href":"https:\/\/www.europesays.com\/uk\/wp-json\/wp\/v2\/media\/111627"}],"wp:attachment":[{"href":"https:\/\/www.europesays.com\/uk\/wp-json\/wp\/v2\/media?parent=111626"}],"wp:term":[{"taxonomy":"category","embeddable":true,"href":"https:\/\/www.europesays.com\/uk\/wp-json\/wp\/v2\/categories?post=111626"},{"taxonomy":"post_tag","embeddable":true,"href":"https:\/\/www.europesays.com\/uk\/wp-json\/wp\/v2\/tags?post=111626"}],"curies":[{"name":"wp","href":"https:\/\/api.w.org\/{rel}","templated":true}]}}