{"id":173754,"date":"2025-06-10T19:46:08","date_gmt":"2025-06-10T19:46:08","guid":{"rendered":"https:\/\/www.europesays.com\/uk\/173754\/"},"modified":"2025-06-10T19:46:08","modified_gmt":"2025-06-10T19:46:08","slug":"one-tech-tip-how-to-protect-your-23andme-genetic-data","status":"publish","type":"post","link":"https:\/\/www.europesays.com\/uk\/173754\/","title":{"rendered":"One Tech Tip: How to protect your 23andMe genetic data"},"content":{"rendered":"<p>Your support helps us to tell the story<\/p>\n<p class=\"sc-1uza6dc-0 cKWiEj\">From reproductive rights to climate change to Big Tech, The Independent is on the ground when the story is developing. Whether it&#8217;s investigating the financials of Elon Musk&#8217;s pro-Trump PAC or producing our latest documentary, &#8216;The A Word&#8217;, which shines a light on the American women fighting for reproductive rights, we know how important it is to parse out the facts from the messaging.<\/p>\n<p class=\"sc-1uza6dc-0 cKWiEj\">At such a critical moment in US history, we need reporters on the ground. Your donation allows us to keep sending journalists to speak to both sides of the story.<\/p>\n<p class=\"sc-1uza6dc-0 cKWiEj\">The Independent is trusted by Americans across the entire political spectrum. And unlike many other quality news outlets, we choose not to lock Americans out of our reporting and analysis with paywalls. We believe quality journalism should be available to everyone, paid for by those who can afford it.<\/p>\n<p><strong class=\"sc-1uza6dc-1 huxBsk\">Your support makes all the difference.<\/strong>Read more<\/p>\n<p>Remember 23andMe? The company that gave customers saliva-based DNA testing kits to learn about their ancestry?<\/p>\n<p>Founded in 2006, the company also conducted health research and drug development. But it struggled to find a profitable business model and eventually filed for Chapter 11 bankruptcy protection back in March, raising concerns about the safety of customer data.<\/p>\n<p>Well, 27 states and the <a href=\"https:\/\/www.independent.co.uk\/topic\/district-of-columbia\" target=\"_blank\" rel=\"noopener\">District of Columbia<\/a> on Monday filed a lawsuit in bankruptcy court seeking to block the sale of the company&#8217;s archive of genetic data without customer consent. The lawsuit comes as a biotechnology company seeks court\u2019s approval to buy the struggling firm.<\/p>\n<p>If you were a customer of 23andMe, you&#8217;re probably wondering what is going on with your data. It turns out you do have options if you want to protect your genetic self.<\/p>\n<p> What happened to 23andMe? <\/p>\n<p>23andMe filed for Chapter 11 bankruptcy protection back in March. Anne Wojcicki, who co-founded the company nearly two decades ago and served as its <a href=\"https:\/\/www.independent.co.uk\/topic\/ceo\" target=\"_blank\" rel=\"noopener\">CEO<\/a> stepped down. The San Francisco-based company said that it would look to sell \u201csubstantially all of its assets\u201d through a court-approved reorganization plan. <\/p>\n<p>Wojcicki intends to bid on 23andMe as the company pursues a sale through the bankruptcy process. In a statement on social media, Wojcicki said that she resigned as CEO to be \u201cin the best position\u201d as an independent bidder.<\/p>\n<p>23andMe said that filing for Chapter 11 bankruptcy protection helps facilitate a sale of the company, meaning that it\u2019s seeking new ownership. The company said it wants to pull back on its real estate footprint and has asked the court to reject lease contracts in <a href=\"https:\/\/www.independent.co.uk\/topic\/san-francisco\" target=\"_blank\" rel=\"noopener\">San Francisco<\/a> and Sunnyvale, <a href=\"https:\/\/www.independent.co.uk\/topic\/california\" target=\"_blank\" rel=\"noopener\">California<\/a>, and elsewhere to help cut costs. But the company plans to keep operating during the process. <\/p>\n<p> I used the service, is my DNA data safe? <\/p>\n<p>In a post about the Chapter 11 process, 23andMe said its users\u2019 privacy and data are important considerations in any transaction and that any buyer will be required to comply with applicable laws when it comes to how it treats customer data. <\/p>\n<p>But experts note that laws have limits. For one, the U.S. has no federal privacy law and only about 20 states do.<\/p>\n<p>There are also security concerns. For instance, the turmoil of bankruptcy and related job cuts could leave fewer employees to protect customers\u2019 data against hackers. It wouldn\u2019t be the first time \u2014 a 2023 data breach exposed the genetic data of nearly 7 million customers at 23andMe, which later agreed to pay $30 million in cash to settle a class-action lawsuit accusing the company of failing to protect customers whose personal information was exposed.<\/p>\n<p>Experts note that DNA data is particularly sensitive \u2014 and thus valuable. <\/p>\n<p>\u201cAt a fundamental biological level, this is you and only you,\u201d said David Choffnes, a computer science professor at Northeastern University and executive director of its Cybersecurity and Privacy Institute. \u201cIf you have an email address that gets compromised, you can find another email provider and start using a new email address. And you\u2019re pretty much able to move on with your life without problem. And you just can\u2019t do that with your genetic code.\u201d <\/p>\n<p>23andMe says it does not share information with health insurance companies, employers or public databases without users\u2019 consent and with law enforcement only if required by a valid legal process, such as a subpoena. Choffnes said while that\u2019s good, it\u2019s a fairly narrow set of categories. <\/p>\n<p>\u201cThere\u2019s still other things that they are allowed to do with that data, including, as they mentioned, provide cross context, behavioral or targeted advertising,\u201d he said. \u201cSo, you know, in a sense, even if they aren\u2019t sending your personal data to an advertiser, there\u2019s a long line of research that identifies how third parties can re-identify you from de-identified data by looking for patterns in it. And so if they\u2019re targeting you with advertisements, for example, based on some information that they have about your genetic data, there\u2019s probably a way that other parties could piece together other information they have access to.\u201d <\/p>\n<p> How can I delete my data from 23andMe? <\/p>\n<p>California Attorney General Rob Bonta issued an urgent consumer alert before 23andMe filed for bankruptcy \u2014 noting the company\u2019s financial distress and reminding people they have the right to have their data deleted. <\/p>\n<p>If you have a 23andMe account, you can delete your data by logging in and going to \u201csettings\u201d and scrolling to a section called \u201c23andMe Data\u201d at the bottom of the page. Then, click \u201cView,\u201d download it if you want a copy then go to the \u201cDelete Data\u201d section and click \u201cPermanently Delete <a href=\"https:\/\/www.independent.co.uk\/topic\/data\" target=\"_blank\" rel=\"noopener\">Data<\/a>.\u201d 23andMe will email you to confirm and you will need to follow the link in the email to confirm your deletion request. <\/p>\n<p>If you previously asked 23andMe to store your saliva sample and DNA, you can also ask that it be destroyed by going to your account settings and clicking on \u201cPreferences.\u201d And you can withdraw consent from third-party researchers to use your genetic data and sample under \u201cResearch and Product Consents.\u201d<\/p>\n","protected":false},"excerpt":{"rendered":"Your support helps us to tell the story From reproductive rights to climate change to Big Tech, The&hellip;\n","protected":false},"author":2,"featured_media":173755,"comment_status":"","ping_status":"","sticky":false,"template":"","format":"standard","meta":{"footnotes":""},"categories":[3846],"tags":[267,70,16,15],"class_list":{"0":"post-173754","1":"post","2":"type-post","3":"status-publish","4":"format-standard","5":"has-post-thumbnail","7":"category-genetics","8":"tag-genetics","9":"tag-science","10":"tag-uk","11":"tag-united-kingdom"},"share_on_mastodon":{"url":"https:\/\/pubeurope.com\/@uk\/114660795121596771","error":""},"_links":{"self":[{"href":"https:\/\/www.europesays.com\/uk\/wp-json\/wp\/v2\/posts\/173754","targetHints":{"allow":["GET"]}}],"collection":[{"href":"https:\/\/www.europesays.com\/uk\/wp-json\/wp\/v2\/posts"}],"about":[{"href":"https:\/\/www.europesays.com\/uk\/wp-json\/wp\/v2\/types\/post"}],"author":[{"embeddable":true,"href":"https:\/\/www.europesays.com\/uk\/wp-json\/wp\/v2\/users\/2"}],"replies":[{"embeddable":true,"href":"https:\/\/www.europesays.com\/uk\/wp-json\/wp\/v2\/comments?post=173754"}],"version-history":[{"count":0,"href":"https:\/\/www.europesays.com\/uk\/wp-json\/wp\/v2\/posts\/173754\/revisions"}],"wp:featuredmedia":[{"embeddable":true,"href":"https:\/\/www.europesays.com\/uk\/wp-json\/wp\/v2\/media\/173755"}],"wp:attachment":[{"href":"https:\/\/www.europesays.com\/uk\/wp-json\/wp\/v2\/media?parent=173754"}],"wp:term":[{"taxonomy":"category","embeddable":true,"href":"https:\/\/www.europesays.com\/uk\/wp-json\/wp\/v2\/categories?post=173754"},{"taxonomy":"post_tag","embeddable":true,"href":"https:\/\/www.europesays.com\/uk\/wp-json\/wp\/v2\/tags?post=173754"}],"curies":[{"name":"wp","href":"https:\/\/api.w.org\/{rel}","templated":true}]}}