{"id":181063,"date":"2025-06-13T12:27:09","date_gmt":"2025-06-13T12:27:09","guid":{"rendered":"https:\/\/www.europesays.com\/uk\/181063\/"},"modified":"2025-06-13T12:27:09","modified_gmt":"2025-06-13T12:27:09","slug":"belfast-trust-questions-over-cost-of-muscular-dystrophy-drug","status":"publish","type":"post","link":"https:\/\/www.europesays.com\/uk\/181063\/","title":{"rendered":"Belfast Trust: Questions over cost of muscular dystrophy drug"},"content":{"rendered":"<p class=\"ssrcss-1q0x1qg-Paragraph e1jhz7w10\">A spokesperson for Belfast Trust apologised to patients, saying said it was &#8220;not in a position&#8221; to offer the treatment.<\/p>\n<p class=\"ssrcss-1q0x1qg-Paragraph e1jhz7w10\">The spokesperson said a multi-disciplinary team approach is adopted for patients with Duchenne Muscular Dystrophy which includes physiotherapists, neurology, cardiology and respiratory specialists as well as endocrine specialists.<\/p>\n<p class=\"ssrcss-1q0x1qg-Paragraph e1jhz7w10\">When asked why their costing was higher than Oxford University Hospitals Trust, a spokesperson said: &#8220;It is not possible for the Belfast Trust to comment on costs associated with service delivery within another organisation as individual providers will have different infrastructure and staffing levels in place.&#8221;<\/p>\n<p class=\"ssrcss-1q0x1qg-Paragraph e1jhz7w10\">A statement from the charity Duchenne UK said patients in Northern Ireland are losing out to a &#8220;cruel postcode lottery&#8221;.<\/p>\n<p class=\"ssrcss-1q0x1qg-Paragraph e1jhz7w10\">&#8220;The estimated cost that Belfast Trust has produced seems high and does not align with any other figures we have seen from other places.&#8221;<\/p>\n","protected":false},"excerpt":{"rendered":"A spokesperson for Belfast Trust apologised to patients, saying said it was &#8220;not in a position&#8221; to offer&hellip;\n","protected":false},"author":2,"featured_media":181064,"comment_status":"","ping_status":"","sticky":false,"template":"","format":"standard","meta":{"footnotes":""},"categories":[4315],"tags":[105,4326,16,15],"class_list":{"0":"post-181063","1":"post","2":"type-post","3":"status-publish","4":"format-standard","5":"has-post-thumbnail","7":"category-medication","8":"tag-health","9":"tag-medication","10":"tag-uk","11":"tag-united-kingdom"},"share_on_mastodon":{"url":"https:\/\/pubeurope.com\/@uk\/114676055812046955","error":""},"_links":{"self":[{"href":"https:\/\/www.europesays.com\/uk\/wp-json\/wp\/v2\/posts\/181063","targetHints":{"allow":["GET"]}}],"collection":[{"href":"https:\/\/www.europesays.com\/uk\/wp-json\/wp\/v2\/posts"}],"about":[{"href":"https:\/\/www.europesays.com\/uk\/wp-json\/wp\/v2\/types\/post"}],"author":[{"embeddable":true,"href":"https:\/\/www.europesays.com\/uk\/wp-json\/wp\/v2\/users\/2"}],"replies":[{"embeddable":true,"href":"https:\/\/www.europesays.com\/uk\/wp-json\/wp\/v2\/comments?post=181063"}],"version-history":[{"count":0,"href":"https:\/\/www.europesays.com\/uk\/wp-json\/wp\/v2\/posts\/181063\/revisions"}],"wp:featuredmedia":[{"embeddable":true,"href":"https:\/\/www.europesays.com\/uk\/wp-json\/wp\/v2\/media\/181064"}],"wp:attachment":[{"href":"https:\/\/www.europesays.com\/uk\/wp-json\/wp\/v2\/media?parent=181063"}],"wp:term":[{"taxonomy":"category","embeddable":true,"href":"https:\/\/www.europesays.com\/uk\/wp-json\/wp\/v2\/categories?post=181063"},{"taxonomy":"post_tag","embeddable":true,"href":"https:\/\/www.europesays.com\/uk\/wp-json\/wp\/v2\/tags?post=181063"}],"curies":[{"name":"wp","href":"https:\/\/api.w.org\/{rel}","templated":true}]}}