{"id":197139,"date":"2025-06-19T12:35:11","date_gmt":"2025-06-19T12:35:11","guid":{"rendered":"https:\/\/www.europesays.com\/uk\/197139\/"},"modified":"2025-06-19T12:35:11","modified_gmt":"2025-06-19T12:35:11","slug":"i-team-looks-into-data-protection-in-free-genetic-testing-and-research-initiative","status":"publish","type":"post","link":"https:\/\/www.europesays.com\/uk\/197139\/","title":{"rendered":"I-Team looks into data protection in free genetic testing and research initiative"},"content":{"rendered":"<p>HOOVER, Ala. (WBMA) \u2014 A pioneering initiative in Alabama is making advanced precision medicine accessible to rural and underserved communities across the state. Southern Research&#8217;s Catalyst program provides free genetic testing to adults aged 19 and older, regardless of income or insurance status. The data collected is used in clinical trials to advance medical research.<\/p>\n<p>Dr. Marquisha Jarman, owner of Comprehensive Pediatrics and Internal Medicine in Hoover, is among the providers offering the test. &#8220;For me, I&#8217;ve always wanted to offer my patients an opportunity to participate in research studies and to have an opportunity to have testing done,&#8221; said Jarman. &#8220;If I had some genetic testing that you didn&#8217;t have to pay out of pocket for, because a lot of them are really expensive, I said I would like to offer it to you.&#8221;<\/p>\n<p>The process involves patients providing a blood sample at their doctor&#8217;s office, which is then sent to a genomic lab in Massachusetts for analysis. Niall Lennon, Chief Scientific Officer at Broad Clinical Labs, explained, &#8220;We\u2019re looking for little signals in the genome that might say someone is at increased risk of developing a certain disease.&#8221;<\/p>\n<p><strong>SEE ALSO: <a href=\"https:\/\/abc3340.com\/news\/abc-3340-news-iteam\/university-of-alabama-veterans-benefits-alleged-delay-certified-claims-federal-education-benefit-veteran-military-department-of-veterans-affairs-office-of-veteran-and-military-affairs-students-concerns#\" target=\"_blank\" title=\"https:\/\/abc3340.com\/news\/abc-3340-news-iteam\/university-of-alabama-veterans-benefits-alleged-delay-certified-claims-federal-education-benefit-veteran-military-department-of-veterans-affairs-office-of-veteran-and-military-affairs-students-concerns#\" class=\"themeColorForLinks\" rel=\"noopener\">UA student veterans allege delays in benefits, issues with on campus office<\/a><br \/>SEE ALSO: <a href=\"https:\/\/abc3340.com\/news\/abc-3340-news-iteam\/center-point-jefferson-county-squatters-woodside-condominiums-shadowood-circle-fire-medical-safety-concerns-condemned-buildings-#\" target=\"_blank\" title=\"https:\/\/abc3340.com\/news\/abc-3340-news-iteam\/center-point-jefferson-county-squatters-woodside-condominiums-shadowood-circle-fire-medical-safety-concerns-condemned-buildings-#\" class=\"themeColorForLinks\" rel=\"noopener\">Fires and legal loopholes: The I-Team questions how squatters remain in condemned condos<\/a><\/strong><\/p>\n<p>Jarman said some people have been skeptical of participating due to privacy concerns, but emphasizes measures are taken to protect the patient&#8217;s information.<\/p>\n<p>Southern Research ensures that personal identifying information and genomic data are stored separately, linked only by a unique code. &#8220;They get a specific identifier for their sample that does not travel with their name,&#8221; said Khalilah Brown, Chief Medical Officer for Southern Research and the project lead for Catalyst.<\/p>\n<p>Lennon emphasized the security measures in place, stating, &#8220;We are regulated by the same laws that regulate clinical testing done in hospitals&#8230; The data we generate here is never sold&#8230; It\u2019s not available to other companies or insurers.&#8221;<\/p>\n<p>Participants receive clinically useful information and are connected to a genetic counselor to understand their results and any additional testing needed. The program aims to help individuals make informed healthcare decisions while contributing to research on genetics and common diseases.<\/p>\n","protected":false},"excerpt":{"rendered":"HOOVER, Ala. (WBMA) \u2014 A pioneering initiative in Alabama is making advanced precision medicine accessible to rural and&hellip;\n","protected":false},"author":2,"featured_media":197140,"comment_status":"","ping_status":"","sticky":false,"template":"","format":"standard","meta":{"footnotes":""},"categories":[3846],"tags":[14825,6511,8747,267,80013,80014,11923,67516,70,80012,16,15],"class_list":{"0":"post-197139","1":"post","2":"type-post","3":"status-publish","4":"format-standard","5":"has-post-thumbnail","7":"category-genetics","8":"tag-clinical-trials","9":"tag-data-protection","10":"tag-genetic-testing","11":"tag-genetics","12":"tag-genomic-data","13":"tag-healthcare-decisions","14":"tag-precision-medicine","15":"tag-privacy-concerns","16":"tag-science","17":"tag-southern-research","18":"tag-uk","19":"tag-united-kingdom"},"share_on_mastodon":{"url":"https:\/\/pubeurope.com\/@uk\/114710061397409489","error":""},"_links":{"self":[{"href":"https:\/\/www.europesays.com\/uk\/wp-json\/wp\/v2\/posts\/197139","targetHints":{"allow":["GET"]}}],"collection":[{"href":"https:\/\/www.europesays.com\/uk\/wp-json\/wp\/v2\/posts"}],"about":[{"href":"https:\/\/www.europesays.com\/uk\/wp-json\/wp\/v2\/types\/post"}],"author":[{"embeddable":true,"href":"https:\/\/www.europesays.com\/uk\/wp-json\/wp\/v2\/users\/2"}],"replies":[{"embeddable":true,"href":"https:\/\/www.europesays.com\/uk\/wp-json\/wp\/v2\/comments?post=197139"}],"version-history":[{"count":0,"href":"https:\/\/www.europesays.com\/uk\/wp-json\/wp\/v2\/posts\/197139\/revisions"}],"wp:featuredmedia":[{"embeddable":true,"href":"https:\/\/www.europesays.com\/uk\/wp-json\/wp\/v2\/media\/197140"}],"wp:attachment":[{"href":"https:\/\/www.europesays.com\/uk\/wp-json\/wp\/v2\/media?parent=197139"}],"wp:term":[{"taxonomy":"category","embeddable":true,"href":"https:\/\/www.europesays.com\/uk\/wp-json\/wp\/v2\/categories?post=197139"},{"taxonomy":"post_tag","embeddable":true,"href":"https:\/\/www.europesays.com\/uk\/wp-json\/wp\/v2\/tags?post=197139"}],"curies":[{"name":"wp","href":"https:\/\/api.w.org\/{rel}","templated":true}]}}