{"id":385476,"date":"2025-08-30T17:28:16","date_gmt":"2025-08-30T17:28:16","guid":{"rendered":"https:\/\/www.europesays.com\/uk\/385476\/"},"modified":"2025-08-30T17:28:16","modified_gmt":"2025-08-30T17:28:16","slug":"director-of-ghana-institute-of-clinical-genetics-calls-for-national-effort-to-combat-sickle-cell-disease","status":"publish","type":"post","link":"https:\/\/www.europesays.com\/uk\/385476\/","title":{"rendered":"Director of Ghana Institute of Clinical Genetics calls for national effort to combat sickle cell disease"},"content":{"rendered":"

\"\"<\/p>\n

Director of the Ghana Institute of Clinical Genetics, Dr. Ammah Benneh-Akwasi Kuma, has urged a collective national effort to tackle sickle cell disease, stressing that the responsibility lies with clinicians, researchers, policymakers, patients, and their families.<\/p>\n

He made the call at a public lecture on Friday, August 29, to mark the 50th anniversary of the institute, which was founded with what he described as a \u201csimple, profound mission to provide hope\u201d to individuals and families affected by sickle cell disease.<\/p>\n

Speaking on the theme, \u201cTranslating Research into Care: 50 Years of Sickle Cell Excellence,\u201d Dr. Kuma highlighted the institute\u2019s transformation into a center for clinical care, research, training, and advocacy. He emphasized the importance of ensuring that scientific findings extend beyond academic publications to deliver tangible benefits for patients.<\/p>\n

\u201cIts true value lies in improving the lives of patients, in making diagnosis early, treatment more effective, and support more holistic,\u201d he said.<\/p>\n

Sickle cell disease remains a major public health challenge in Ghana, with the Ghana Health Service estimating that 2% of newborns\u2014around 15,000 babies annually\u2014are born with the condition. About 20% of the population carries the sickle cell trait, placing Ghana among the countries with the highest prevalence globally.<\/p>\n

Despite progress made in research and clinical care, the disease continues to account for a significant number of deaths, particularly among children under five. Limited public awareness also contributes to late diagnosis and inadequate support for affected families.<\/p>\n

The institute\u2019s 50th anniversary, Dr. Kuma noted, is not only a celebration of achievements but also a call to action. \u201cTogether, we can build a future where every child born with sickle cell disease receives the best possible care, and where no life is limited by their condition,\u201d he added.<\/p>\n

Source:Myjoyonline<\/strong><\/p>\n

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