{"id":389868,"date":"2025-09-01T18:22:09","date_gmt":"2025-09-01T18:22:09","guid":{"rendered":"https:\/\/www.europesays.com\/uk\/389868\/"},"modified":"2025-09-01T18:22:09","modified_gmt":"2025-09-01T18:22:09","slug":"toddlers-survival-from-rare-disease-inspires-brave-like-beck-foundation","status":"publish","type":"post","link":"https:\/\/www.europesays.com\/uk\/389868\/","title":{"rendered":"Toddler\u2019s survival from rare disease inspires Brave Like Beck Foundation"},"content":{"rendered":"<p>Alyssa Dapolito<br \/>\n\u00a0|\u00a0 Brave Like Beck Foundation<\/p>\n<p>STUART \u2014 Beckham Willett, a local toddler in Stuart, survived an incredibly rare genetic disease (so rare there are only 17 known cases in the world \u2014 all ending in terminal outcomes).<\/p>\n<p>The prognosis was devastating.<\/p>\n<p>Some of the world\u2019s leading specialists told his parents there was no chance of survival.<\/p>\n<p>Beck beat all odds and survived, capturing the attention of doctors from literally around the world. Geneticists from Israel and Australia are now working with Beck&#8217;s fibroblast cells to launch research that could lead to gene therapy, potentially changing the future for other children with his disease.<\/p>\n<p>On top of this rarity, this story inspired local restaurant owners, Rick and Taylor Wilson of The Gafford and Palm City Social, to host a benefit to raise money and awareness for the family. Dozens of Stuart and Martin County businesses donated auction items and hundreds came in attendance to show support.<\/p>\n<p>In one night, we raised over $100,000.<\/p>\n<p>We quickly learned that so many families right here in Martin County are going through similar challenges and need the support. After the benefit, we went on to create a foundation, Brave Like Beck Foundation, in the spirit of Beck, who is my nephew, and because Brave Like Beck is more than a story about one child&#8230; it\u2019s a powerful testament to the resilience of the human spirit and the extraordinary compassion of our Martin County community.<\/p>\n<p>The foundation\u2019s mission is simple yet profound: to bring hope, healing, and tangible help to families facing the most difficult days of their lives. Brave Like Beck exists to make sure no family feels alone in the fight.<\/p>\n<p>On Monday, Sept. 29, Palm City Social will once again host a benefit night, this time in honor of the Brave Like Beck Foundation. The evening will celebrate Beckham\u2019s incredible resilience, honor the courage of other children, and give the community a chance to continue the movement they started.<\/p>\n<p>For more information, to purchase tickets, or to learn how to support the Brave Like Beck Foundation, visit <a href=\"http:\/\/www.bravelikebeck.org\/\" target=\"_blank\" rel=\"noopener\">www.bravelikebeck.org<\/a> or contact <a href=\"mailto:alyssa@bravelikebeck.org\">alyssa@bravelikebeck.org<\/a>.<\/p>\n","protected":false},"excerpt":{"rendered":"Alyssa Dapolito \u00a0|\u00a0 Brave Like Beck Foundation STUART \u2014 Beckham Willett, a local toddler in Stuart, survived an&hellip;\n","protected":false},"author":2,"featured_media":389869,"comment_status":"","ping_status":"","sticky":false,"template":"","format":"standard","meta":{"footnotes":""},"categories":[3846],"tags":[12450,17772,18686,8742,76407,3899,8748,267,50856,134549,5179,5185,17425,5180,70,135076,5181,16,15],"class_list":{"0":"post-389868","1":"post","2":"type-post","3":"status-publish","4":"format-standard","5":"has-post-thumbnail","7":"category-genetics","8":"tag-charity","9":"tag-charity-u0026-philanthropy","10":"tag-county","11":"tag-disorders","12":"tag-fl","13":"tag-genetic","14":"tag-genetic-disorders","15":"tag-genetics","16":"tag-martin","17":"tag-martin-county","18":"tag-overall","19":"tag-overall-positive","20":"tag-philanthropy","21":"tag-positive","22":"tag-science","23":"tag-stuart","24":"tag-u0026","25":"tag-uk","26":"tag-united-kingdom"},"share_on_mastodon":{"url":"https:\/\/pubeurope.com\/@uk\/115130436605505083","error":""},"_links":{"self":[{"href":"https:\/\/www.europesays.com\/uk\/wp-json\/wp\/v2\/posts\/389868","targetHints":{"allow":["GET"]}}],"collection":[{"href":"https:\/\/www.europesays.com\/uk\/wp-json\/wp\/v2\/posts"}],"about":[{"href":"https:\/\/www.europesays.com\/uk\/wp-json\/wp\/v2\/types\/post"}],"author":[{"embeddable":true,"href":"https:\/\/www.europesays.com\/uk\/wp-json\/wp\/v2\/users\/2"}],"replies":[{"embeddable":true,"href":"https:\/\/www.europesays.com\/uk\/wp-json\/wp\/v2\/comments?post=389868"}],"version-history":[{"count":0,"href":"https:\/\/www.europesays.com\/uk\/wp-json\/wp\/v2\/posts\/389868\/revisions"}],"wp:featuredmedia":[{"embeddable":true,"href":"https:\/\/www.europesays.com\/uk\/wp-json\/wp\/v2\/media\/389869"}],"wp:attachment":[{"href":"https:\/\/www.europesays.com\/uk\/wp-json\/wp\/v2\/media?parent=389868"}],"wp:term":[{"taxonomy":"category","embeddable":true,"href":"https:\/\/www.europesays.com\/uk\/wp-json\/wp\/v2\/categories?post=389868"},{"taxonomy":"post_tag","embeddable":true,"href":"https:\/\/www.europesays.com\/uk\/wp-json\/wp\/v2\/tags?post=389868"}],"curies":[{"name":"wp","href":"https:\/\/api.w.org\/{rel}","templated":true}]}}