{"id":396237,"date":"2025-09-04T03:41:14","date_gmt":"2025-09-04T03:41:14","guid":{"rendered":"https:\/\/www.europesays.com\/uk\/396237\/"},"modified":"2025-09-04T03:41:14","modified_gmt":"2025-09-04T03:41:14","slug":"constipated-children-being-failed-by-lack-of-services-say-parents","status":"publish","type":"post","link":"https:\/\/www.europesays.com\/uk\/396237\/","title":{"rendered":"Constipated children being failed by lack of services, say parents"},"content":{"rendered":"<p><img decoding=\"async\" src=\"https:\/\/www.europesays.com\/uk\/wp-content\/uploads\/2025\/09\/grey-placeholder.png\" class=\"sc-d1200759-0 dkIvM hide-when-no-script\" aria-label=\"image unavailable\"\/><img decoding=\"async\"   src=\"https:\/\/www.europesays.com\/uk\/wp-content\/uploads\/2025\/09\/42ddb000-7cf2-11f0-b048-e3872696e5df.jpg.webp.webp\" loading=\"eager\" alt=\"BBC Elissa in a pale blue striped shirt sitting on a leather sofa, wearing glasses with her hair down\" class=\"sc-d1200759-0 dvfjxj\"\/>BBC<\/p>\n<p>Elissa says constipation needs to be screened for in every area of healthcare <\/p>\n<p class=\"sc-9a00e533-0 hxuGS\">A mother who feared her two-year-old son&#8217;s untreated constipation could have killed him is calling for access to children&#8217;s continence services to be made a national priority. <\/p>\n<p class=\"sc-9a00e533-0 hxuGS\">Elissa Novak said Ivan was constantly vomiting, losing weight and in severe pain when it was at its worst, and a doctor said 2kg of his 10kg (22lb) body weight was estimated to be stool.<\/p>\n<p class=\"sc-9a00e533-0 hxuGS\">The number of children aged up to 16 admitted to English hospitals suffering with constipation, among other symptoms, is at a 10-year high, with more than 44,000 admissions in 2023-24, according to NHS figures.<\/p>\n<p class=\"sc-9a00e533-0 hxuGS\">Children are being failed by the absence of dedicated bladder and bowel services in some parts of the country, an expert said.<\/p>\n<p class=\"sc-9a00e533-0 hxuGS\">About 1.5 million children in the UK suffer with constipation, according to the charity Bladder and Bowel UK.<\/p>\n<p class=\"sc-9a00e533-0 hxuGS\">As many children returned to school this week, charities have told the BBC they are seeing a spike in calls to their helplines.<\/p>\n<p class=\"sc-9a00e533-0 hxuGS\">&#8220;It&#8217;s a huge problem and many healthcare professionals don&#8217;t consider it a serious issue in children,&#8221; said Davina Richardson, a children&#8217;s specialist nurse with the charity.<\/p>\n<p class=\"sc-9a00e533-0 hxuGS\">&#8220;Discussing wee and poo is very un-British. It&#8217;s not something that we as a culture do.&#8221;<\/p>\n<p class=\"sc-9a00e533-0 hxuGS\">Elissa said Ivan, who is now aged five, had been &#8220;completely robbed of his toddler years&#8221; due to health issues resulting from constipation.<\/p>\n<p class=\"sc-9a00e533-0 hxuGS\">He was admitted to hospital 25 times in one six-month period in 2022 for emergency treatment.<\/p>\n<p class=\"sc-9a00e533-0 hxuGS\">&#8220;It was horrific,&#8221; Elissa said. &#8220;He was so frail he couldn&#8217;t lift himself up or do anything.<\/p>\n<p class=\"sc-9a00e533-0 hxuGS\">&#8220;He was in pain all the time and either screaming or just lying there because he was too weak.&#8221;<\/p>\n<p><img decoding=\"async\" src=\"https:\/\/www.europesays.com\/uk\/wp-content\/uploads\/2025\/09\/grey-placeholder.png\" class=\"sc-d1200759-0 dkIvM hide-when-no-script\" aria-label=\"image unavailable\"\/><img decoding=\"async\"   src=\"https:\/\/www.europesays.com\/uk\/wp-content\/uploads\/2025\/09\/355f6720-7cf2-11f0-b3e4-810e75294fb0.jpg.webp.webp\" loading=\"lazy\" alt=\"Elissa Novak Ivan lying down in a bath of water showing signs of being underweight. He is a young boy with blonde hair.\" class=\"sc-d1200759-0 dvfjxj\"\/>Elissa Novak<\/p>\n<p>Ivan became severely underweight as a result of constipation<\/p>\n<p class=\"sc-9a00e533-0 hxuGS\">Elissa, 35, from Nuneaton, Warwickshire, said she had constantly gone to her GP to try to get help and answers.<\/p>\n<p class=\"sc-9a00e533-0 hxuGS\">At that time in Warwickshire, there was no bowel or bladder community service, which meant they were going to A&amp;E up to four times a week.<\/p>\n<p class=\"sc-9a00e533-0 hxuGS\">It was only when things got to a crisis point that Elissa was told constipation was causing Ivan&#8217;s pain. <\/p>\n<p class=\"sc-9a00e533-0 hxuGS\">She thinks he would have died had there been any further delay in treating it.<\/p>\n<p class=\"sc-9a00e533-0 hxuGS\">Elissa was told Ivan&#8217;s entire colon was impacted, which had pushed up into his lung cavity and compromised his lungs. <\/p>\n<p>&#8216;Signs missed&#8217;<\/p>\n<p class=\"sc-9a00e533-0 hxuGS\"><b id=\"&quot;\" class=\"sc-d16436d-0 jpoiOL\">&#8220;<\/b>His stomach was squashed. All of his organs were being pushed out of the way,&#8221; Elissa said. <\/p>\n<p class=\"sc-9a00e533-0 hxuGS\">&#8220;We were in A&amp;E for up to 12 hours at a time&#8230; just waiting for an enema of all things.<\/p>\n<p class=\"sc-9a00e533-0 hxuGS\">&#8220;It was a very horrible time. It was so traumatic for everybody.&#8221;<\/p>\n<p class=\"sc-9a00e533-0 hxuGS\">Ivan has two genetic syndromes which affect his cognitive functions.<\/p>\n<p class=\"sc-9a00e533-0 hxuGS\">Elissa thinks this played a part in the signs being missed and constipation not being diagnosed sooner.<\/p>\n<p class=\"sc-9a00e533-0 hxuGS\">&#8220;It was seen as &#8216;that&#8217;s just what disabled children are like&#8217;. We did actually have one consultant who said &#8216;disabled children just scream&#8217;,&#8221; Elissa said.<\/p>\n<p class=\"sc-9a00e533-0 hxuGS\">&#8220;It wasn&#8217;t looked into properly, it wasn&#8217;t taken seriously until he was really at crisis point. His signs of pain weren&#8217;t recognised. It was just a perfect storm really.&#8221;<\/p>\n<p><img decoding=\"async\" src=\"https:\/\/www.europesays.com\/uk\/wp-content\/uploads\/2025\/09\/grey-placeholder.png\" class=\"sc-d1200759-0 dkIvM hide-when-no-script\" aria-label=\"image unavailable\"\/><img decoding=\"async\"   src=\"https:\/\/www.europesays.com\/uk\/wp-content\/uploads\/2025\/09\/66f3ba70-88e6-11f0-b391-6936825093bd.png.webp.webp\" loading=\"lazy\" alt=\"Elissa Novak Ivan in hospital wearing a blue dressing gown with his stomach visibly distended\" class=\"sc-d1200759-0 dvfjxj\"\/>Elissa Novak<\/p>\n<p>Ivan&#8217;s stomach became extremely swollen due to impacted stools<\/p>\n<p class=\"sc-9a00e533-0 hxuGS\">Ivan now has a care package so his constipation can be managed at home with laxatives and daily bowel wash outs.<\/p>\n<p class=\"sc-9a00e533-0 hxuGS\">&#8220;It is a huge part of his life and a huge part of his day. He still suffers pain but it&#8217;s so much better,&#8221; his mother said.<\/p>\n<p class=\"sc-9a00e533-0 hxuGS\">Elissa is campaigning for better bladder and bowel care services across the country.<\/p>\n<p class=\"sc-9a00e533-0 hxuGS\">&#8220;People are falling through the cracks,&#8221; she said.<\/p>\n<p><img decoding=\"async\" src=\"https:\/\/www.europesays.com\/uk\/wp-content\/uploads\/2025\/09\/grey-placeholder.png\" class=\"sc-d1200759-0 dkIvM hide-when-no-script\" aria-label=\"image unavailable\"\/><img decoding=\"async\"   src=\"https:\/\/www.europesays.com\/uk\/wp-content\/uploads\/2025\/09\/06b255c0-8348-11f0-a2c4-0f55e42ed0ec.jpg.webp.webp\" loading=\"lazy\" alt=\"Ivan wearing a cowboy hat and eating a snack. He has a white shirt on and a blue lanyard around his neck with a green plastic shape on it. A woman with brown hair can just be seen in the foreground, holding a packet of snacks.\" class=\"sc-d1200759-0 dvfjxj\"\/><\/p>\n<p>Ivan has laxatives and daily bowel irrigations to manage his constipation<\/p>\n<p>Tips for parents and carers<\/p>\n<p class=\"sc-9a00e533-0 hxuGS\">Here are some of the ways to prevent a child from becoming constipated:<\/p>\n<ul class=\"sc-6f869981-0 fusmZA\">\n<li class=\"sc-734a601e-0 huNRXw\">Ensure your child&#8217;s diet includes plenty of fruit and vegetables <\/li>\n<li class=\"sc-734a601e-0 huNRXw\">Make sure children are drinking enough water-based drinks daily &#8211; dehydration can make constipation more likely or worse<\/li>\n<li class=\"sc-734a601e-0 huNRXw\">A good toilet position is also helpful. Children need their bottom and the backs of their thighs well supported. Feet need to be flat on a firm surface with knees slightly higher than hips, as that helps relax the pelvic floor<\/li>\n<\/ul>\n<p class=\"sc-9a00e533-0 hxuGS\">Source: Bladder and Bowel UK<\/p>\n<p class=\"sc-9a00e533-0 hxuGS\">Brenda Cheer, a paediatric specialist continence nurse with children&#8217;s bowel and bladder charity Eric, said children&#8217;s constipation was on the rise for a number of reasons, including delayed potty training and today&#8217;s generation of children spending more time in childcare.<\/p>\n<p class=\"sc-9a00e533-0 hxuGS\">She said children were being failed in areas where there was no dedicated children&#8217;s continence service.<\/p>\n<p class=\"sc-9a00e533-0 hxuGS\">&#8220;There&#8217;s huge disparity of those services,&#8221; she said.<\/p>\n<p class=\"sc-9a00e533-0 hxuGS\">&#8220;Where is the parent supposed to go? How are they supposed to get the help they need? How is a family supposed to access support if there is no children&#8217;s bladder and bowel nurse?&#8221;<\/p>\n<p class=\"sc-9a00e533-0 hxuGS\">Constipation can be treated in the community and should not require a hospital admission, but is not being recognised, Ms Cheer added.<\/p>\n<p><img decoding=\"async\" src=\"https:\/\/www.europesays.com\/uk\/wp-content\/uploads\/2025\/09\/grey-placeholder.png\" class=\"sc-d1200759-0 dkIvM hide-when-no-script\" aria-label=\"image unavailable\"\/><img decoding=\"async\"   src=\"https:\/\/www.europesays.com\/uk\/wp-content\/uploads\/2025\/09\/ab936100-8763-11f0-ac15-0be71ebd833b.jpg.webp.webp\" loading=\"lazy\" alt=\"Holly wearing a grey top and glasses with her daughter Ayda sitting on her lap holding a cuddly toy dog \" class=\"sc-d1200759-0 dvfjxj\"\/><\/p>\n<p>Holly described feeling &#8220;broken&#8221; as a parent at not being able to get Ayda help<\/p>\n<p class=\"sc-9a00e533-0 hxuGS\">Holly Brennan told the BBC her daughter Ayda had suffered with chronic constipation for three years and she had been in &#8220;turmoil&#8221; at the lack of help.<\/p>\n<p class=\"sc-9a00e533-0 hxuGS\">It started when Ayda got a virus when she was two years old and spiralled from there, Holly said.<\/p>\n<p class=\"sc-9a00e533-0 hxuGS\">The 31-year-old described going to her GP six times and being prescribed laxatives to treat it &#8211; but not being given any guidance on how to use them, and said she had been told her daughter would grow out of it.<\/p>\n<p class=\"sc-9a00e533-0 hxuGS\">When it was at its worst, Ayda, now five, would have up to 15 accidents a day.<\/p>\n<p class=\"sc-9a00e533-0 hxuGS\">Holly, from Clevedon, Bristol, said: &#8220;It was three years of hell. She very much didn&#8217;t grow out of it.<\/p>\n<p class=\"sc-9a00e533-0 hxuGS\">&#8220;We didn&#8217;t want to go out for day trips because you wouldn&#8217;t know where the toilet would be and she was constantly having accidents. <\/p>\n<p class=\"sc-9a00e533-0 hxuGS\">&#8220;It was just complete stress and caused arguments between my husband and I [about] how to deal with it. It upset her [Ayda] and you try not to get cross with them but it&#8217;s just frustration and it just affects everything.&#8221; <\/p>\n<p><img decoding=\"async\" src=\"https:\/\/www.europesays.com\/uk\/wp-content\/uploads\/2025\/09\/grey-placeholder.png\" class=\"sc-d1200759-0 dkIvM hide-when-no-script\" aria-label=\"image unavailable\"\/><img decoding=\"async\"   src=\"https:\/\/www.europesays.com\/uk\/wp-content\/uploads\/2025\/09\/69b6ace0-87e7-11f0-b36e-47414de99d82.jpg.webp.webp\" loading=\"lazy\" alt=\"Ayda wearing a blue T-shirt with flowers on it. She smiles at the camera and has short blonde hair and behind her is a playground area with a slide and a wooden shelter further behind.\" class=\"sc-d1200759-0 dvfjxj\"\/><\/p>\n<p>Holly said it was really upsetting not being able to get help for Ayda&#8217;s constipation<\/p>\n<p class=\"sc-9a00e533-0 hxuGS\">Sometimes it would take Ayda a week to go to the toilet because she associated it with pain, her mum explained.<\/p>\n<p class=\"sc-9a00e533-0 hxuGS\">&#8220;It was a vicious circle. It was just complete turmoil&#8230; something that everyone just used to say she would grow out of or &#8216;it&#8217;s a phase&#8217; or &#8216;she just needs to learn&#8217;,&#8221; Holly added.<\/p>\n<p class=\"sc-9a00e533-0 hxuGS\">&#8220;Our life literally revolved around the toilet for three years.&#8221;<\/p>\n<p class=\"sc-9a00e533-0 hxuGS\">Holly was not referred for further treatment for Ayda or told about children&#8217;s continence services that could help.<\/p>\n<p class=\"sc-9a00e533-0 hxuGS\">She said it felt like &#8220;the blind leading the blind&#8221; with several doctors unable to advise her and she had reached a dead end.<\/p>\n<p class=\"sc-9a00e533-0 hxuGS\">It was only when she was told about the charity Eric that things started to get better.<\/p>\n<p class=\"sc-9a00e533-0 hxuGS\">&#8220;There was finally an answer on how to help her,&#8221; Holly added. &#8220;It [the website] described my child.&#8221;<\/p>\n<p class=\"sc-9a00e533-0 hxuGS\">Ayda is now off laxatives and able to control her bowels.<\/p>\n<p class=\"sc-9a00e533-0 hxuGS\">&#8220;I&#8217;m very proud of her and how she&#8217;s coped. She&#8217;s taken it all in her stride,&#8221; Holly said.<\/p>\n<p class=\"sc-9a00e533-0 hxuGS\">A Department of Health and Social Care spokesperson said it is committed to ensuring children get the right care and support when they need it for conditions such as constipation.<\/p>\n<p class=\"sc-9a00e533-0 hxuGS\">In a statement, it said: &#8220;As part of our 10-year health plan, neighbourhood health services will bring together teams of professionals closer to people&#8217;s home to provide comprehensive community care. <\/p>\n<p class=\"sc-9a00e533-0 hxuGS\">&#8220;We will also strengthen health visiting services so all families have access to high-quality, personalised support.&#8221;<\/p>\n<p class=\"sc-9a00e533-0 hxuGS\">Jodie Gosling, MP for Nuneaton and who chairs the all-party parliamentary group for bladder and bowel continence care, said constipation had fallen low on the list of priorities facing local council and integrated care boards.<\/p>\n<p class=\"sc-9a00e533-0 hxuGS\">She said children&#8217;s continence care &#8220;has been a silent casualty of chronic underfunding and reactive healthcare&#8221;.<\/p>\n<p class=\"sc-9a00e533-0 hxuGS\">&#8220;This leads to a postcode lottery, where even high-need areas fail to address issues like constipation adequately.&#8221;<\/p>\n","protected":false},"excerpt":{"rendered":"BBC Elissa says constipation needs to be screened for in every area of healthcare A mother who feared&hellip;\n","protected":false},"author":2,"featured_media":396238,"comment_status":"","ping_status":"","sticky":false,"template":"","format":"standard","meta":{"footnotes":""},"categories":[4316],"tags":[105,4348,16,15],"class_list":{"0":"post-396237","1":"post","2":"type-post","3":"status-publish","4":"format-standard","5":"has-post-thumbnail","7":"category-healthcare","8":"tag-health","9":"tag-healthcare","10":"tag-uk","11":"tag-united-kingdom"},"share_on_mastodon":{"url":"https:\/\/pubeurope.com\/@uk\/115143959518150327","error":""},"_links":{"self":[{"href":"https:\/\/www.europesays.com\/uk\/wp-json\/wp\/v2\/posts\/396237","targetHints":{"allow":["GET"]}}],"collection":[{"href":"https:\/\/www.europesays.com\/uk\/wp-json\/wp\/v2\/posts"}],"about":[{"href":"https:\/\/www.europesays.com\/uk\/wp-json\/wp\/v2\/types\/post"}],"author":[{"embeddable":true,"href":"https:\/\/www.europesays.com\/uk\/wp-json\/wp\/v2\/users\/2"}],"replies":[{"embeddable":true,"href":"https:\/\/www.europesays.com\/uk\/wp-json\/wp\/v2\/comments?post=396237"}],"version-history":[{"count":0,"href":"https:\/\/www.europesays.com\/uk\/wp-json\/wp\/v2\/posts\/396237\/revisions"}],"wp:featuredmedia":[{"embeddable":true,"href":"https:\/\/www.europesays.com\/uk\/wp-json\/wp\/v2\/media\/396238"}],"wp:attachment":[{"href":"https:\/\/www.europesays.com\/uk\/wp-json\/wp\/v2\/media?parent=396237"}],"wp:term":[{"taxonomy":"category","embeddable":true,"href":"https:\/\/www.europesays.com\/uk\/wp-json\/wp\/v2\/categories?post=396237"},{"taxonomy":"post_tag","embeddable":true,"href":"https:\/\/www.europesays.com\/uk\/wp-json\/wp\/v2\/tags?post=396237"}],"curies":[{"name":"wp","href":"https:\/\/api.w.org\/{rel}","templated":true}]}}