{"id":5672,"date":"2025-04-09T11:02:21","date_gmt":"2025-04-09T11:02:21","guid":{"rendered":"https:\/\/www.europesays.com\/uk\/5672\/"},"modified":"2025-04-09T11:02:21","modified_gmt":"2025-04-09T11:02:21","slug":"our-bonnies-broken-arm-turned-out-to-be-killer-cancer-now-she-has-less-than-a-year-to-live-shes-only-5","status":"publish","type":"post","link":"https:\/\/www.europesays.com\/uk\/5672\/","title":{"rendered":"Our Bonnie\u2019s \u2018broken arm\u2019 turned out to be killer cancer &#8211; now she has less than a year to live, she&#8217;s only 5"},"content":{"rendered":"<p>FIVE-year-old Bonnie Spence has been given less than a year to live after doctors mistook her deadly cancer as a &#8216;broken arm&#8217;. <\/p>\n<p>&#8220;Not in our wildest nightmares would we have thought we\u2019d be in this position,&#8221; her dad Iain, 41, said.<\/p>\n<p><a href=\"#\"><img decoding=\"async\" alt=\"Five-year-old girl smiling outdoors.\" height=\"960\" width=\"759\" data-credit=\"SWNS\" data-img=\"https:\/\/www.europesays.com\/uk\/wp-content\/uploads\/2025\/04\/23f51de9-5d36-439f-af21-2a04fbec4260.jpg\" data-caption=\"Bonnie was in excruciating pain because of a lump on her arm\"   loading=\"lazy\" src=\"https:\/\/www.europesays.com\/uk\/wp-content\/uploads\/2025\/04\/23f51de9-5d36-439f-af21-2a04fbec4260.jpg\" role=\"img\"\/><\/a><\/p>\n<p>7<\/p>\n<p>Bonnie was in excruciating pain because of a lump on her armCredit: SWNS<a href=\"#\"><img decoding=\"async\" alt=\"Young girl lying down with a swollen, red arm.\" height=\"960\" width=\"796\" data-credit=\"SWNS\" data-img=\"https:\/\/www.europesays.com\/uk\/wp-content\/uploads\/2025\/04\/c87ed4ba-a1e9-4301-8004-fd07fe03da55.jpg\" data-caption=\"Doctors initially thought her arm was broken \u2013 but it turned out to be a rare and aggressive cancer called rhabdoid sarcoma\"   loading=\"lazy\" src=\"https:\/\/www.europesays.com\/uk\/wp-content\/uploads\/2025\/04\/c87ed4ba-a1e9-4301-8004-fd07fe03da55.jpg\" role=\"img\"\/><\/a><\/p>\n<p>7<\/p>\n<p>Doctors initially thought her arm was broken \u2013 but it turned out to be a rare and aggressive cancer called rhabdoid sarcomaCredit: SWNS<a href=\"#\"><img decoding=\"async\" alt=\"A young girl with her mother in a hospital room.\" height=\"960\" width=\"720\" data-credit=\"SWNS\" data-img=\"https:\/\/www.europesays.com\/uk\/wp-content\/uploads\/2025\/04\/bonnie-spence-mum-zoe-five-985643790.jpg\" data-caption=\"Bonnie with mum Zoe after she had her arm amputated\"   loading=\"lazy\" src=\"https:\/\/www.europesays.com\/uk\/wp-content\/uploads\/2025\/04\/bonnie-spence-mum-zoe-five-985643790.jpg\" role=\"img\"\/><\/a><\/p>\n<p>7<\/p>\n<p>Bonnie with mum Zoe after she had her arm amputatedCredit: SWNS<\/p>\n<p>The little girl from Oswaldtwistle, Lancashire, was left in <a href=\"https:\/\/www.thesun.co.uk\/tvandshowbiz\/33904323\/megan-mckenna-pain-unusual-condition-wrist-bunion\/\" target=\"_blank\" rel=\"noopener\">excruciating pain<\/a> because of the <a href=\"https:\/\/www.thesun.co.uk\/news\/15800214\/teens-world-collapses-lump-arm-turns-rare-cancer\/\" target=\"_blank\" rel=\"noopener\">lump on her arm<\/a>. <\/p>\n<p>Initially, her mum Zoe, 30, thought might have been a break. <\/p>\n<p>Doctors in the area agreed, putting the lump down to a possible <a href=\"https:\/\/www.thesun.co.uk\/health\/18053790\/arm-pain-medical-emergency\/\" rel=\"noopener\" target=\"_blank\">sprain<\/a>, and sent the tot home with her arm in a sling.<\/p>\n<p>However, Bonnie\u2019s arm kept on swelling &#8211; leaving her in even more agony.<\/p>\n<p>Two months later, after several hospital appointments in Lancashire, mum Zoe decided to drive her daughter three-and-a-half hours to Newcastle, near her father\u2019s home. <\/p>\n<p>\u201cBonnie was rolling around in pain,&#8221; Iain said.<\/p>\n<p>They decided to take her to the Royal Victoria Hospital, where Iain said doctors took one look at her and knew she had a <a href=\"https:\/\/www.thesun.co.uk\/fabulous\/34122632\/mum-battles-brain-tumour\/\" target=\"_blank\" rel=\"noopener\">tumour<\/a>.<\/p>\n<p>Bonnie was diagnosed with stage four rhabdoid <a href=\"https:\/\/www.thesun.co.uk\/health\/33287866\/signs-bone-cancer-osteosarcoma-ewing-sarcoma-kids-teens\/\" target=\"_blank\" rel=\"noopener\">sarcoma<\/a> in February, a rare and aggressive form of <a href=\"https:\/\/www.thesun.co.uk\/health\/32769750\/common-products-fuelling-surge-childhood-cancer\/\" target=\"_blank\" rel=\"noopener\">childhood cancer<\/a>.<\/p>\n<p>According to doctors, the pressure on Bonnie\u2019s arm had become so bad that it led to <a href=\"https:\/\/www.thesun.co.uk\/fabulous\/8073261\/university-student-arms-doctors-cut-blood-supply\/\" target=\"_blank\" rel=\"noopener\">compartment syndrome<\/a>, an increase in pressure inside a muscle, which restricts blood flow and causes pain.<\/p>\n<p>Just five days after her diagnosis, her parents had to make the difficult decision to allow doctors to <a href=\"https:\/\/www.thesun.co.uk\/health\/34274259\/ae-wait-dvt-woke-up-missing-leg-amputated\/\" target=\"_blank\" rel=\"noopener\">amputate<\/a> the youngster\u2019s left arm.<\/p>\n<p>Sarcoma UK: Amelie Callanan\u2019s Story &#8211; four years on<\/p>\n<p>Now doctors predict the five-year-old has less than a year to live, with the cancer having spread to her <a href=\"https:\/\/www.thesun.co.uk\/topic\/lung-cancer\/\" rel=\"noopener\" target=\"_blank\">lungs<\/a>.<\/p>\n<p>Zoe said: \u201cIn the space of nine weeks, it went from a suspected broken arm to now terminal cancer with only a year given.<\/p>\n<p>\u201cThis news absolutely shattered my whole world.<\/p>\n<p>\u201cShe\u2019s on chemotherapy to prolong her life, but we have been told the chemotherapy will stop working around the 28-week mark, and we will have no other options left.\u201d<\/p>\n<p>The mum of five now faces expensive three-and-a-half hour long trips to see her daughter.<\/p>\n<p>Bonnie remains with her father in Newcastle, though it is not clear why. <\/p>\n<p><a href=\"#\"><img decoding=\"async\" alt=\"A young girl with a nasal cannula plays with playdough.\" height=\"960\" width=\"720\" data-credit=\"SWNS\" data-img=\"https:\/\/www.europesays.com\/uk\/wp-content\/uploads\/2025\/04\/bonnie-spence-five-year-old-985643781.jpg\" data-caption=\"She\u2019s on chemotherapy to prolong her life, which will stop working soon\"   loading=\"lazy\" src=\"https:\/\/www.europesays.com\/uk\/wp-content\/uploads\/2025\/04\/bonnie-spence-five-year-old-985643781.jpg\" role=\"img\"\/><\/a><\/p>\n<p>7<\/p>\n<p>She\u2019s on chemotherapy to prolong her life, which will stop working soonCredit: SWNS<a href=\"#\"><img decoding=\"async\" alt=\"Doctors predict the five-year-old has less than a year to live\" height=\"960\" width=\"540\" data-credit=\"SWNS\" data-img=\"https:\/\/www.europesays.com\/uk\/wp-content\/uploads\/2025\/04\/bonnie-spence-hospital-five-year-985643761.jpg\" data-caption=\"Doctors predict the five-year-old has less than a year to live\"   loading=\"lazy\" src=\"https:\/\/www.europesays.com\/uk\/wp-content\/uploads\/2025\/04\/bonnie-spence-hospital-five-year-985643761.jpg\" role=\"img\"\/><\/a><\/p>\n<p>7<\/p>\n<p>Doctors predict the five-year-old has less than a year to liveCredit: SWNS<a href=\"#\"><img decoding=\"async\" alt=\"A father and daughter hug in front of a waterfall.\" height=\"960\" width=\"720\" data-credit=\"SWNS\" data-img=\"https:\/\/www.europesays.com\/uk\/wp-content\/uploads\/2025\/04\/bonnie-spence-dad-iain-five-985643783.jpg\" data-caption=\"Dad Iain hopes Bonnie\u2019s case raises awareness of rhabdoid sarcoma.\"   loading=\"lazy\" src=\"https:\/\/www.europesays.com\/uk\/wp-content\/uploads\/2025\/04\/bonnie-spence-dad-iain-five-985643783.jpg\" role=\"img\"\/><\/a><\/p>\n<p>7<\/p>\n<p>Dad Iain hopes Bonnie\u2019s case raises awareness of rhabdoid sarcoma.Credit: SWNS<\/p>\n<p>HGV driver dad Iain and NHS midwife stepmum Caroline are off while while they spend time with Bonnie as she faces her final months. <\/p>\n<p>Iain is only on \u00a3118.75 per week statutory sick pay and Caroline\u2019s occupational sick pay runs out in October, meaning they could face the difficult decision to return to work while Bonnie is still at home.<\/p>\n<p>Iain said: \u201cIt\u2019s not the most ideal situation with her mother being over there &#8211; she\u2019s never been away from her mum.<\/p>\n<p>\u201cEveryone understands that unfortunately this is the best way to do it.<\/p>\n<p>\u201cHer mum\u2019s trying to get over as much as she can, and we\u2019re trying to do the best as we can for her as well.\u201d<\/p>\n<p>&#8216;Just a lump on the arm&#8217;<\/p>\n<p>Stepmum Caroline, 32, said: \u201cShe\u2019s having to pay for caravan parks and Airbnbs to stay in, and because of Bonnie\u2019s needs they need to be adapted that can fit the wheelchair with one arm and things like that.<\/p>\n<p>\u201cThat increases the cost of Airbnbs that are available to her.\u201d<\/p>\n<p>Iain added that he hopes Bonnie\u2019s case raises awareness of rhabdoid sarcoma.<\/p>\n<p>He said: \u201cIt just presented as a lump on the arm.&#8221;<\/p>\n<p>Bonnie&#8217;s dad has launched a <a href=\"https:\/\/www.gofundme.com\/f\/a-little-bonnie-lass\" rel=\"nofollow noopener\" target=\"_blank\">GoFundMe<\/a> to cover his living costs and expenses. <\/p>\n<p>Meanwhile, her mum, Zoe has also launched a <a href=\"https:\/\/www.gofundme.com\/f\/my-beautiful-bonnie\" rel=\"nofollow noopener\" target=\"_blank\">GoFundMe<\/a> for travel and days out. <\/p>\n<p>Collectively, the fundraisers have raised over \u00a325,000 at the time of writing.<\/p>\n<p><a href=\"#\"><img decoding=\"async\" alt=\"A young girl with a nasal cannula stands on a beach.\" height=\"960\" width=\"540\" data-credit=\"SWNS\" data-img=\"https:\/\/www.europesays.com\/uk\/wp-content\/uploads\/2025\/04\/bonnie-spence-five-year-old-985643734.jpg\" data-caption=\"The tragic news has shattered her family\u2019s world\"   loading=\"lazy\" src=\"https:\/\/www.europesays.com\/uk\/wp-content\/uploads\/2025\/04\/bonnie-spence-five-year-old-985643734.jpg\" role=\"img\"\/><\/a><\/p>\n<p>7<\/p>\n<p>The tragic news has shattered her family\u2019s worldCredit: SWNS<\/p>\n<p>What is rhabdoid sarcoma?<\/p>\n<p>Rhabdoid sarcoma, also known as malignant rhabdoid tumour (MRT), is an extremely rare and aggressive type of cancer. <\/p>\n<p>It most often starts in the kidneys but can also form in soft tissues anywhere in the body, including the brain, where it\u2019s called an atypical teratoid\/rhabdoid tumour (ATRT). <\/p>\n<p>It&#8217;s caused by changes in a specific gene that usually helps control cell growth.<\/p>\n<p><strong>Who gets it?<\/strong><br \/>Rhabdoid tumours mainly affect very young children, usually under the age of five. <\/p>\n<p>In rare cases, it can also occur in older children and adults, but this is uncommon. It\u2019s slightly more common in boys than girls.<\/p>\n<p><strong>Symptoms<\/strong><\/p>\n<p>Symptoms vary depending on where the tumour is located. In the kidneys, signs may include blood in the urine, a swollen tummy, or a lump that can be felt. <\/p>\n<p>If the tumour is in the brain, it may cause vomiting, headaches, changes in behaviour, or problems with balance and coordination. <\/p>\n<p>In other soft tissue areas, it might appear as a fast-growing lump, sometimes painful. <\/p>\n<p>Because rhabdoid tumours grow quickly, symptoms often develop rapidly and may worsen over days or weeks.<\/p>\n<p><strong>UK facts<\/strong><\/p>\n<p>Rhabdoid sarcoma is very rare, with only a small number of cases diagnosed in the UK each year. <\/p>\n<p>It accounts for a tiny fraction of childhood cancers but is one of the most aggressive. <\/p>\n<p>Early diagnosis and treatment are crucial, though outcomes can still be challenging due to how fast the cancer can spread. <\/p>\n<p>Research into more effective treatments is ongoing, and children with this diagnosis are usually treated at specialist cancer centres.<\/p>\n<p>Source: NHS + Sarcoma UK<\/p>\n","protected":false},"excerpt":{"rendered":"FIVE-year-old Bonnie Spence has been given less than a year to live after doctors mistook her deadly cancer&hellip;\n","protected":false},"author":2,"featured_media":5673,"comment_status":"","ping_status":"","sticky":false,"template":"","format":"standard","meta":{"footnotes":""},"categories":[11],"tags":[870,105,2936,437,16,15],"class_list":{"0":"post-5672","1":"post","2":"type-post","3":"status-publish","4":"format-standard","5":"has-post-thumbnail","7":"category-health","8":"tag-childhood-diseases-and-illnesses","9":"tag-health","10":"tag-lung-cancer","11":"tag-section-healthnews-health","12":"tag-uk","13":"tag-united-kingdom"},"share_on_mastodon":{"url":"https:\/\/pubeurope.com\/@uk\/114307671178688745","error":""},"_links":{"self":[{"href":"https:\/\/www.europesays.com\/uk\/wp-json\/wp\/v2\/posts\/5672","targetHints":{"allow":["GET"]}}],"collection":[{"href":"https:\/\/www.europesays.com\/uk\/wp-json\/wp\/v2\/posts"}],"about":[{"href":"https:\/\/www.europesays.com\/uk\/wp-json\/wp\/v2\/types\/post"}],"author":[{"embeddable":true,"href":"https:\/\/www.europesays.com\/uk\/wp-json\/wp\/v2\/users\/2"}],"replies":[{"embeddable":true,"href":"https:\/\/www.europesays.com\/uk\/wp-json\/wp\/v2\/comments?post=5672"}],"version-history":[{"count":0,"href":"https:\/\/www.europesays.com\/uk\/wp-json\/wp\/v2\/posts\/5672\/revisions"}],"wp:featuredmedia":[{"embeddable":true,"href":"https:\/\/www.europesays.com\/uk\/wp-json\/wp\/v2\/media\/5673"}],"wp:attachment":[{"href":"https:\/\/www.europesays.com\/uk\/wp-json\/wp\/v2\/media?parent=5672"}],"wp:term":[{"taxonomy":"category","embeddable":true,"href":"https:\/\/www.europesays.com\/uk\/wp-json\/wp\/v2\/categories?post=5672"},{"taxonomy":"post_tag","embeddable":true,"href":"https:\/\/www.europesays.com\/uk\/wp-json\/wp\/v2\/tags?post=5672"}],"curies":[{"name":"wp","href":"https:\/\/api.w.org\/{rel}","templated":true}]}}