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Browsing Tag

rare diseases

18 posts
CCelebrities
Carrie Ann Inaba details decade-long battle with Sjogren's disease
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Carrie Ann Inaba details decade-long battle with Sjogren’s disease

  • April 24, 2026
NEWYou can now listen to Fox News articles! Longtime “Dancing with the Stars” judge Carrie Ann Inaba is…
MMusic
Crowds could trigger Celine Dion during comeback, according to patient with her disease
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Crowds could trigger Celine Dion during comeback, according to patient with her disease

  • April 7, 2026
NEWYou can now listen to Fox News articles! A former marathon runner who was diagnosed with the same…
BBusiness
WHO, autism treatment, milk mustache: Morning Rounds
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FDA, urged to avoid controversy, creates new headache with attack on UniQure

  • March 6, 2026
Adam Feuerstein is a senior writer and biotech columnist, reporting on the crossroads of drug development, business, Wall…
HHealth care
Couple donates $11 million to Lurie Children's Hospital
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Couple donates $11 million to Lurie Children’s Hospital

  • December 10, 2025
A couple with deep ties to the Chicago area is donating $11 million to Lurie Children’s Hospital in…
MMedication
Pharma sounds alarm over EU plans to procure novel medicines – POLITICO
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Pharma sounds alarm over EU plans to procure novel medicines – POLITICO

  • November 13, 2025
But the pharmaceutical industry argues that any changes should be made cautiously and with clear guidelines for everyone…
GGenetics
GeneDx Announced as Sequencing Partner for Sunshine Genetics Act Pilot
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GeneDx Announced as Sequencing Partner for Sunshine Genetics Act Pilot

  • October 15, 2025
Source: JGI/Jamie Grill / Getty Images Genetic sequencing and diagnostics company GeneDx announced this week that it would…
GGenetics
GeneDx to Partner with Florida’s Sunshine Genetics Network, Launching Nation’s First State-Backed Genomic Newborn Screening Program
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GeneDx to Partner with Florida’s Sunshine Genetics Network, Launching Nation’s First State-Backed Genomic Newborn Screening Program

  • October 13, 2025
Florida Institute for Pediatric Rare Diseases and Representative Adam Anderson ushering in a new era of preventative care…
GGenetics
Only four people in Australia have been diagnosed with rare genetic disease CHOPS
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Only four people in Australia have been diagnosed with rare genetic disease CHOPS

  • October 11, 2025
Isla Steed is your fairly typical teenager, according to her mum. The 14-year-old is “a stubborn little person”…
GGenetics
NLRP3 inflammasome and hearing loss: from mechanisms to therapies | Journal of Neuroinflammation
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NLRP3 inflammasome and hearing loss: from mechanisms to therapies | Journal of Neuroinflammation

  • October 6, 2025
Sensorineural hearing loss (SNHL) affects approximately 1.5 billion people globally. Approximately 430 million of these patients require rehabilitation…
GGenetics
Knowing patient’s genetic make-up may change the way medicines are prescribed
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Knowing patient’s genetic make-up may change the way medicines are prescribed

  • October 5, 2025
SINGAPORE – Not all medicines work the same way on every patient, and part of the answer lies…
United States
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