“It’s a struggle in day-to-day life, because there’s not a lot of information about the condition, there isn’t a lot of research we can look at,” Kelham said.<\/p>\n
“We both constantly worry every day because with FNLC there’s always a chance of cardiac arrest.<\/p>\n
“We don’t want that to happen, so we take every day as it comes, and put a smile on Harrison’s face and we do the best we can as parents. <\/p>\n
“But Harrison doesn’t stop doing what he does, and we keep going.”<\/p>\n
Due to his condition, Kelham and Shannon, 31, have to take Harrison to Great Ormond Street Hospital in London for treatment. Something the family struggle with. <\/p>\n
“His current car seat isn’t right for him, he gets agitated trying to get comfortable, and we have to keep stopping every 30 to 45 minutes,” Kelham added.<\/p>\n
“Car journeys are a problem in general, and he works himself up and can be sick because of it.”<\/p>\n","protected":false},"excerpt":{"rendered":"“It’s a struggle in day-to-day life, because there’s not a lot of information about the condition, there isn’t…\n","protected":false},"author":3,"featured_media":117655,"comment_status":"","ping_status":"","sticky":false,"template":"","format":"standard","meta":{"footnotes":""},"categories":[26],"tags":[815,159,67,132,68],"class_list":{"0":"post-117654","1":"post","2":"type-post","3":"status-publish","4":"format-standard","5":"has-post-thumbnail","7":"category-genetics","8":"tag-genetics","9":"tag-science","10":"tag-united-states","11":"tag-unitedstates","12":"tag-us"},"share_on_mastodon":{"url":"https:\/\/pubeurope.com\/@us\/114969386839599432","error":""},"_links":{"self":[{"href":"https:\/\/www.europesays.com\/us\/wp-json\/wp\/v2\/posts\/117654","targetHints":{"allow":["GET"]}}],"collection":[{"href":"https:\/\/www.europesays.com\/us\/wp-json\/wp\/v2\/posts"}],"about":[{"href":"https:\/\/www.europesays.com\/us\/wp-json\/wp\/v2\/types\/post"}],"author":[{"embeddable":true,"href":"https:\/\/www.europesays.com\/us\/wp-json\/wp\/v2\/users\/3"}],"replies":[{"embeddable":true,"href":"https:\/\/www.europesays.com\/us\/wp-json\/wp\/v2\/comments?post=117654"}],"version-history":[{"count":0,"href":"https:\/\/www.europesays.com\/us\/wp-json\/wp\/v2\/posts\/117654\/revisions"}],"wp:featuredmedia":[{"embeddable":true,"href":"https:\/\/www.europesays.com\/us\/wp-json\/wp\/v2\/media\/117655"}],"wp:attachment":[{"href":"https:\/\/www.europesays.com\/us\/wp-json\/wp\/v2\/media?parent=117654"}],"wp:term":[{"taxonomy":"category","embeddable":true,"href":"https:\/\/www.europesays.com\/us\/wp-json\/wp\/v2\/categories?post=117654"},{"taxonomy":"post_tag","embeddable":true,"href":"https:\/\/www.europesays.com\/us\/wp-json\/wp\/v2\/tags?post=117654"}],"curies":[{"name":"wp","href":"https:\/\/api.w.org\/{rel}","templated":true}]}}