KANSAS CITY, Mo. \u2014 Dozens of trucks, motorcycles and even camels lined up Saturday to honor 3-year-old Tucker Langford, who is battling a rare genetic disorder known as butterfly skin.<\/p>\n
<\/p>\n
Brian Luton<\/p>\n
Tucker Langford, 3-year-old battling rare skin condition<\/p>\n
The welcome home parade served as a celebration for the young boy who suffers from recessive dystrophic epidermolysis bullosa. The condition results in the skin being extremely fragile and prone to painful blistering, scarring, and destruction.<\/p>\n
“He was missing skin on both of his feet, his hands, his chest,” Chandler Langford, Tucker’s mother, said. “So, any friction that he gets will cause an open wound.”<\/p>\n
<\/p>\n
Brian Luton<\/p>\n
Community rallies with parade for 3-year-old Tucker battling rare genetic disorder<\/p>\n
Tucker was sent home this week from Children’s Mercy Hospital on hospice care. The community organized the parade, knowing Tucker’s love for trucks and jeeps.<\/p>\n
Tucker sat surrounded by family as the community put on the show designed specifically for him.<\/p>\n
<\/p>\n
Brian Luton<\/p>\n
Chandler Langford, Tucker’s mother<\/p>\n
“When we were pulling, I was crying because seeing everyone supporting Tucker and our family means a lot to us,” Chandler Langford said.<\/p>\n
Rick Langford, Tucker’s grandfather, expressed pride in seeing the community’s support for his grandson.<\/p>\n
“We always knew he was a superstar, and look, he’s made it to the top of the mountain,” Rick Langford said.<\/p>\n
The grandfather also spoke about Tucker’s resilience throughout his medical journey.<\/p>\n
The family has nicknamed Tucker “Tucker Tough” because of his strength in facing the challenges of his condition.<\/p>\n
<\/p>\n
Brian Luton<\/p>\n
Rick Langford, Tucker’s grandfather<\/p>\n
“Tucker tough, yeah, I actually came up with that because he is tough,” Rick Langford said. “He’s been through a lot with his skin blistering and the things he’s had to go through. But he stuck right through it.”<\/p>\n
Despite initial medical predictions, Tucker has exceeded expectations and continues to show his fighting spirit.<\/p>\n
“He’s had that name since the very beginning because the doctors told him that he wouldn’t make it to one, and here he is three, he’ll be four Christmas Eve. I bet you he will show everyone how tough he is,” Chandler Langford said.<\/p>\n
This story was reported on-air by a journalist and has been converted to this platform with the assistance of AI. Our editorial team verifies all reporting on all platforms for fairness and accuracy.<\/b><\/p>\n
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