{"id":934933,"date":"2026-07-14T19:23:38","date_gmt":"2026-07-14T19:23:38","guid":{"rendered":"https:\/\/www.europesays.com\/us\/934933\/"},"modified":"2026-07-14T19:23:38","modified_gmt":"2026-07-14T19:23:38","slug":"every-time-i-took-a-pill-i-felt-i-was-no-longer-myself-young-adults-describe-antipsychotic-use-after-first-episode-psychosis","status":"publish","type":"post","link":"https:\/\/www.europesays.com\/us\/934933\/","title":{"rendered":"&#8220;Every Time I Took a Pill, I Felt I Was No Longer Myself&#8221;: Young Adults Describe Antipsychotic Use After First-Episode Psychosis"},"content":{"rendered":"<p class=\"western\" align=\"left\">A new <a href=\"https:\/\/journals.sagepub.com\/doi\/10.1177\/00221678251326293\" rel=\"nofollow noopener\" target=\"_blank\">study<\/a> published online by the Journal of Humanistic Psychology examines young adults\u2019 experience of taking and discontinuing antipsychotic drugs after completing a first-episode psychosis (FEP) program. This study, led by Alona Schneidman from the University of Haifa in Israel, finds that the vast majority of participants had a negative experience of antipsychotics. Participants reported psychiatric staff support, a safe environment, and education around relapse were key facilitators in discontinuing antipsychotics while family reluctance was the key barrier. The authors write:<\/p>\n<p class=\"western\" align=\"left\">\u201cThe present study describes changes in APM use patterns among 23 individuals who completed NAVIGATE, an FEP program. Results indicate that many participants had negative experiences with APMs prior to enrolling in NAVIGATE, primarily reporting emotional emptiness, a sense of an altered self, and significant side effects. During the program, all participants expressed a desire to reduce or discontinue their APM dosage. Specifically, ten participants completely stopped using APMs, six reduced to a minimal dose, and seven maintained their current dose as it aligned better with their familial circumstances.\u201d<\/p>\n<p>The study, published online, is set to appear in a special print issue of the Journal of Humanistic Psychology on first person psychopharmacology\u00a0<br \/>\n<img fetchpriority=\"high\" decoding=\"async\" class=\"aligncenter size-full wp-image-270543\" src=\"https:\/\/www.europesays.com\/us\/wp-content\/uploads\/2026\/07\/APUse.jpg\" alt=\"\" width=\"1000\" height=\"667\"  \/><br \/>\n<b>Antipsychotic Discontinuation<\/b><\/p>\n<p align=\"left\"><a href=\"https:\/\/www.madinamerica.com\/drug-info-antipsychotics-schizophrenia\/\" rel=\"nofollow noopener\" target=\"_blank\">Experts<\/a> have questioned the usefulness of both short- and long-term antipsychotic treatment and pointed to mounting evidence of negative effects. <a href=\"https:\/\/www.madinamerica.com\/2023\/12\/antipsychotics-lead-to-worse-outcomes-in-first-episode-psychosis\/\" rel=\"nofollow noopener\" target=\"_blank\">Research<\/a> has found that starting antipsychotics within one month after first-episode psychosis is linked to worse outcomes. Antipsychotics have also been associated with <a href=\"https:\/\/www.madinamerica.com\/2022\/03\/antipsychotics-worsen-cognitive-functioning-first-episode-psychosis\/\" rel=\"nofollow noopener\" target=\"_blank\">worse cognitive functioning<\/a> after first-episode psychosis. One <a href=\"https:\/\/www.madinamerica.com\/2020\/06\/cbt-first-episode-psychosis-effective-without-antipsychotics\/\" rel=\"nofollow noopener\" target=\"_blank\">study<\/a> found that cognitive behavioral therapy for first-episode psychosis led to similar outcomes whether the service user was taking antipsychotics or not.<\/p>\n<p align=\"left\"><a href=\"https:\/\/www.madinamerica.com\/2022\/04\/many-service-users-interested-decreasing-antipsychotic-use-professional-help\/\" rel=\"nofollow noopener\" target=\"_blank\">Research<\/a> has found that a majority of antipsychotic users would like to reduce or discontinue these drugs. However, one <a href=\"https:\/\/www.madinamerica.com\/2023\/10\/mental-health-staff-reluctant-to-support-service-users-in-tapering-antipsychotics-study-finds\/\" rel=\"nofollow noopener\" target=\"_blank\">study<\/a> found that mental health staff was reluctant to assist patients and service users in their efforts to reduce or discontinue their dose. Service users have also reported that <a href=\"https:\/\/www.madinamerica.com\/2024\/11\/service-users-report-psychiatric-professionals-as-the-least-helpful-factor-in-quitting-antipsychotics\/\" rel=\"nofollow noopener\" target=\"_blank\">psychiatric professionals are not helpful<\/a> in their efforts to quit or reduce their antipsychotic use. Despite clinician reluctance to assist in antipsychotic dose reduction and discontinuation, some experts have argued that it is their <a href=\"https:\/\/www.madinamerica.com\/2024\/08\/the-ethics-of-antipsychotic-dose-reduction-and-patient-rights\/\" rel=\"nofollow noopener\" target=\"_blank\">ethical responsibility<\/a> to do so when patients and service users request it.<\/p>\n<p align=\"left\">People that discontinue these drugs often experience difficult and severe <a href=\"https:\/\/www.madinamerica.com\/2024\/03\/study-highlights-difficulty-of-antipsychotic-withdrawal\/\" rel=\"nofollow noopener\" target=\"_blank\">withdrawal symptoms<\/a> that some service users have described as \u201c<a href=\"https:\/\/www.madinamerica.com\/2025\/11\/the-stuff-of-demonic-nightmares-people-describe-withdrawal-from-psychiatric-drugs\/\" rel=\"nofollow noopener\" target=\"_blank\">the stuff of demonic nightmares<\/a>.\u201d <a href=\"https:\/\/www.madinamerica.com\/2021\/09\/tapered-antipsychotic-withdrawal-mitigates-risk-psychotic-symptoms\/\" rel=\"nofollow noopener\" target=\"_blank\">Research<\/a> has repeatedly found that <a href=\"https:\/\/www.madinamerica.com\/2020\/09\/slow-taper-best-antipsychotic-discontinuation\/\" rel=\"nofollow noopener\" target=\"_blank\">slowly tapering<\/a> the dose down is the best way to <a href=\"https:\/\/www.madinamerica.com\/2024\/05\/wunderink-antipsychotics-can-be-tapered-safely-without-increasing-relapse-risk\/\" rel=\"nofollow noopener\" target=\"_blank\">avoid withdrawal<\/a> when discontinuing antipsychotic use. One study found that service users and patients felt <a href=\"https:\/\/www.madinamerica.com\/2024\/05\/case-studies-reveal-patient-empowerment-through-tapering-antipsychotics\/\" rel=\"nofollow noopener\" target=\"_blank\">empowered<\/a> when they were able to find professional help with tapering antipsychotics. Research has also found that stopping these drugs results in improved <a href=\"https:\/\/www.madinamerica.com\/2024\/03\/long-term-outcomes-better-for-those-who-stop-taking-antipsychotics\/\" rel=\"nofollow noopener\" target=\"_blank\">social functioning<\/a>, better quality of life, and better <a href=\"https:\/\/www.madinamerica.com\/2013\/07\/antipsychotic-reductiondiscontinuation-produces-higher-long-term-recovery\/\" rel=\"nofollow noopener\" target=\"_blank\">long-term recovery<\/a>. One <a href=\"https:\/\/www.madinamerica.com\/2021\/02\/stop-taking-antipsychotics-six-times-likely-recover-serious-mental-illness\/\" rel=\"nofollow noopener\" target=\"_blank\">study<\/a> reported that the recovery rate for patients and service users that stopped taking antipsychotics within two years of starting them was six times higher compared to those taking these drugs for more than two years.<\/p>\n<p><b>Study Details<\/b><\/p>\n<p class=\"western\" align=\"left\">The goal of the current work was to explore the lived experience of antipsychotic use and discontinuation among young adults that had experienced FEP and completed NAVIGATE, a program designed to help people recover from FEP through resilience training, family education, assistance in returning to\/continuing work and school, and personalized medication management. The authors also wanted to investigate the facilitators and barriers participants experienced in trying to discontinue antipsychotics.<\/p>\n<p class=\"western\" align=\"left\">To be included in the current work, service users had to have participated in the NAVIGATE program for at least three months in the past three years, experience with psychosis, and be at least 18 years old. Twenty-three participants recruited by NAVIGATE clinical staff from four Israeli clinics gave semi-structured interviews around antipsychotic use and discontinuation. The interviews were conducted over Zoom, audio recorded, and transcribed verbatim. The authors then analyzed the interview data for recurring themes.<\/p>\n<p class=\"western\" align=\"left\">The majority of participants were male (16\/23, 70%), and were working or attending school at the time of their interview (16\/23, 70%). About half of the participants were Orthodox (11\/23, 48%) and secular (12\/23, 52%) Jews. All the participants had used antipsychotics prior to attending the NAVIGATE program and all expressed a desire to stop or reduce antipsychotic drug use. Ten participants (44%) had stopped all antipsychotic drug use at the time of their interview, six (26%) had reduced their dose, and seven (30%) were taking their full dose.<\/p>\n<p class=\"western\" align=\"left\">The authors identified three main themes in the interview data:<\/p>\n<ul>\n<li>\n<p class=\"western\" align=\"left\">Pre-NAVIGATE experience of antipsychotic use<\/p>\n<\/li>\n<li>\n<p class=\"western\" align=\"left\">Facilitators to reduction of antipsychotics during NAVIGATE<\/p>\n<\/li>\n<li>\n<p class=\"western\" align=\"left\">Barriers to redcution of antipsychotics during NAVIGATE<\/p>\n<\/li>\n<\/ul>\n<p class=\"western\" align=\"left\">Only three out of 23 participants (13%) reported positive effects and benefits of taking antipsychotics before attending the NAVIGATE program. These benefits included symptom reduction, sleep improvements, and stabilization of their condition. Twenty participants (87%) reported negative experiences of antipsychotic use. All the participants that reported a negative experience of antipsychotics spoke about emotional emptiness and numbness. One participant said \u201cI felt super empty inside, and I am sure that it was the pills which created this darkness and vacuum inside my body that I was not able to fill.\u201d Half of participants (12\/23, 52%) reported that the emotional blunting led to them feeling inhuman and like their body and brain had been harmed. Participants also reported feeling an altered sense of self on these drugs. One person said:<\/p>\n<p class=\"western\" align=\"left\">\u201cWhen I was taking pills, I lost all my feelings that I used to feel, and those feelings made me the person I am. I was not sad, I was not angry, and I was not happy. I was hollow like a donut without taste of life.\u201d Another reported that \u201cevery time I took a pill, I felt I was no longer myself. Everything mixed up for me as if I became another person.\u201d<\/p>\n<p class=\"western\" align=\"left\">Eleven of 23 participants (48%) reported antipsychotic drugs causing additional challenges such as weight gain.<\/p>\n<p class=\"western\" align=\"left\">\u201cI was 95 kg and it made me ugly, and I was upset about it\u201d said one participant, with another reporting that the weight gain was the most bothersome thing about antipsychotic use: \u201cWhat bothered me was that during the period of using medication, the medication increased my appetite, I gained 20 to 25 kilos and that bothered and upset me the most.\u201d<\/p>\n<p class=\"western\" align=\"left\">Six participants (26%) spoke about the stigma of using antipsychotics, with one saying \u201cit was unbelievably hard that from now on I have a label of being crazy, taking pills. . .and I was terrified that someone would know I got to madhouse, that I was taking pills\u201d<\/p>\n<p class=\"western\" align=\"left\">Participants pointed to three main facilitators to antipsychotic reduction: mutual decision-making, a safe, non-judgmental environment, and education around early identification of relapse. Nineteen of 23 interviewees reported that clinicians involving them in decisions around treatment and antipsychotic use as well as asking for their opinions was beneficial in terms of coming off the drugs. Fourteen participants spoke about the environment of the NAVIGATE program as \u201ca shell that kept me safe and protected\u201d which allowed honest discussion around psychosis and antipsychotics.<\/p>\n<p class=\"western\" align=\"left\">Some participants also pointed to psychoeducation around identifying signs of relapse as beneficial in discontinuing antipsychotics. It is worth noting that while relapse as a result of discontinuing antipsychotics is a real concern for service users and patients, the negative effects that appear after dose reduction or discontinuation are often <a href=\"https:\/\/www.madinamerica.com\/2019\/04\/withdrawal-symptoms-routinely-confound-findings-psychiatric-drug-studies\/\" rel=\"nofollow noopener\" target=\"_blank\">withdrawal<\/a> from the drugs rather than relapse.<\/p>\n<p class=\"western\" align=\"left\">The key barrier to discontinuing antipsychotics was family member reluctance. One participant said \u201cmy parents don\u2019t allow me to lower my pills dose, they are terrified from another attack.\u201d Another reported that despite their own wishes and psychiatrist support in reducing their antipsychotic dose, their parents were concerned with others seeing them relapse:<\/p>\n<p class=\"western\" align=\"left\">\u201cThe doctor suggested me to reduce it [antipsychotics] because I was doing well \u2026 I immediately agreed because medication has a lot of side effects and also has a stigma. We talked about it together and she\u2019s one who really understands how to do it, but when I shared it with my parents they did not allow me to do it \u2026 They were afraid that I will be sick again and everyone around will see this.\u201d<\/p>\n<p class=\"western\" align=\"left\">This study had three main limitations. A significant number of people that were asked to participate in the current work declined. Those that volunteered to take part in this research may have had a more positive view of the NAVIGATE program or clinical staff. The authors did not interview family members or caregivers. This may have provided more depth to the findings. This research was conducted with participants from Israel, limiting generalizability to other populations.<\/p>\n<p class=\"western\" align=\"center\"><b>****<\/b><\/p>\n<p class=\"western\" align=\"left\">Schneidman, A., Roe, D., Zisman-Ilani, Y., &amp; Shpigelman, C.-N. (2025). Perceptions and experiences of antipsychotic use and discontinuation among young adults who completed a first-episode psychosis program. Journal of Humanistic Psychology. (<a href=\"https:\/\/doi.org\/10.1177\/00221678251326293\" rel=\"nofollow noopener\" target=\"_blank\">Link<\/a>)<\/p>\n","protected":false},"excerpt":{"rendered":"A new study published online by the Journal of Humanistic Psychology examines young adults\u2019 experience of taking and&hellip;\n","protected":false},"author":3,"featured_media":934934,"comment_status":"","ping_status":"","sticky":false,"template":"","format":"standard","meta":{"footnotes":"","_share_on_mastodon":"0"},"categories":[34],"tags":[46899,376837,210,302566,1060,376838,51935,67,132,68],"class_list":["post-934933","post","type-post","status-publish","format-standard","has-post-thumbnail","category-medication","tag-antipsychotics","tag-first-episode-psychosis","tag-health","tag-lived-experience","tag-medication","tag-qualitative","tag-shared-decision-making","tag-united-states","tag-unitedstates","tag-us"],"share_on_mastodon":{"url":"https:\/\/pubeurope.com\/@us\/116919967861889399","error":""},"_links":{"self":[{"href":"https:\/\/www.europesays.com\/us\/wp-json\/wp\/v2\/posts\/934933","targetHints":{"allow":["GET"]}}],"collection":[{"href":"https:\/\/www.europesays.com\/us\/wp-json\/wp\/v2\/posts"}],"about":[{"href":"https:\/\/www.europesays.com\/us\/wp-json\/wp\/v2\/types\/post"}],"author":[{"embeddable":true,"href":"https:\/\/www.europesays.com\/us\/wp-json\/wp\/v2\/users\/3"}],"replies":[{"embeddable":true,"href":"https:\/\/www.europesays.com\/us\/wp-json\/wp\/v2\/comments?post=934933"}],"version-history":[{"count":0,"href":"https:\/\/www.europesays.com\/us\/wp-json\/wp\/v2\/posts\/934933\/revisions"}],"wp:featuredmedia":[{"embeddable":true,"href":"https:\/\/www.europesays.com\/us\/wp-json\/wp\/v2\/media\/934934"}],"wp:attachment":[{"href":"https:\/\/www.europesays.com\/us\/wp-json\/wp\/v2\/media?parent=934933"}],"wp:term":[{"taxonomy":"category","embeddable":true,"href":"https:\/\/www.europesays.com\/us\/wp-json\/wp\/v2\/categories?post=934933"},{"taxonomy":"post_tag","embeddable":true,"href":"https:\/\/www.europesays.com\/us\/wp-json\/wp\/v2\/tags?post=934933"}],"curies":[{"name":"wp","href":"https:\/\/api.w.org\/{rel}","templated":true}]}}