{"id":96153,"date":"2025-07-27T07:27:21","date_gmt":"2025-07-27T07:27:21","guid":{"rendered":"https:\/\/www.europesays.com\/us\/96153\/"},"modified":"2025-07-27T07:27:21","modified_gmt":"2025-07-27T07:27:21","slug":"newborn-baby-dies-from-rare-genetic-condition-which-scans-failed-to-pick-up","status":"publish","type":"post","link":"https:\/\/www.europesays.com\/us\/96153\/","title":{"rendered":"Newborn baby dies from rare genetic condition which scans failed to pick up"},"content":{"rendered":"

Moments after Dylan and Rochelle Evrard were pronounced husband and wife, they were showered with pink confetti.<\/p>\n

Cyndi Lauper’s Girls Just Want to Have Fun played over a loudspeaker as they celebrated with family and friends.<\/p>\n

WARNING: This article includes information and images relating to pregnancy loss and neonatal loss, which some readers may find distressing.<\/strong><\/p>\n

The newlyweds were expecting their first baby and their Gold Coast wedding in March 2023 doubled as a gender reveal.<\/p>\n

Rochelle was 22 weeks’ pregnant.<\/p>\n

\"a<\/p>\n

Dylan and Rochelle Evrard’s wedding doubled as a gender reveal for their baby. (Supplied)<\/p>\n

Milli Rose Remidy Evrard was conceived naturally after years of trying.<\/p>\n

Rochelle had severe endometriosis \u2014 when tissue similar to the lining of the womb grows outside the uterus, affecting a woman’s ability to conceive.<\/p>\n

Surgery paved the way for pregnancy.<\/p>\n

Milli born with broken arms and legs<\/p>\n

The Evrards’ baby daughter was born by caesarean section in the Pindarra Private Hospital at Benowa, on the southern Gold Coast, about four months after their wedding.<\/p>\n

\"Black<\/p>\n

Dylan and Rochelle Evrard with their baby Milli, who lived for just six days. (Supplied.)<\/p>\n

Their tiny, much-wanted baby girl had two broken arms and two broken legs after the delivery.<\/p>\n

Scans and tests during the pregnancy had failed to pick up Milli had an extremely rare genetic condition, despite Rochelle complaining about failing to feel her moving during the pregnancy.<\/p>\n

“My whole pregnancy, I was expressing that I was a bit concerned,” she said.<\/p>\n

“I never had a kick count.”<\/p>\n

Within hours of her birth on July 14, Milli was transferred to the Mater Mothers’ Hospital neonatal critical care unit (NCCU) in Brisbane.<\/p>\n

She opened her eyes and locked them onto her dad, Dylan, as she was placed in an ambulance for the drive north to Brisbane.<\/p>\n

“We didn’t know that would be the one and only time she ever opened her eyes,”<\/p><\/blockquote>\n

Rochelle said.\"tattoo<\/p>\n

Rochelle Evrard has a tattoo on her right leg of her holding Milli. (Supplied: Annette Dew)<\/p>\n

Milli died in her parents’ arms six days later.<\/p>\n

Amid the grief, they feel blessed they had almost a week with her.<\/p>\n

“She was beautiful,” Rochelle said.<\/p>\n

“When we touched her, she reacted. She couldn’t move her body but her little toes would go or her little fingers.<\/p>\n

“She definitely reacted to our touch and our sound.”<\/p><\/blockquote>\n

Nursery and home ready for a baby<\/p>\n

The Evrards’ home at Mudgeeraba, in the Gold Coast hinterland, had been meticulously prepared to take their baby home.<\/p>\n

If you, or someone you know, needs help:<\/p>\n